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In 2007, I began my original website, Sonshine's Haven. In 2007, it was turned into a blog and used to keep family updated on my first husband's fight with liver cancer. He passed away November of 2009. We were married for 34+ wonderful years and this journals some of that grief process I've gone through.
I have since remarried another widower, but Mike is missed dearly, and will always be a big part of my life.
At times, all of us will be called to act as witnesses to the suffering of another. We will be unable to affect the outcome physically. Words will fail us. Prayer will seem futile. And yet, the act of bearing witness to someone else's trials is a sacred sorrow that offers and astounding glimpse of eternal joy." by Ginger Garrett
"Being willing to stay with a loved one throughout their travail, can be difficult....YES! But offering yourselves as faithful companions on a dark and dreadful journey can be an unmeasured blessing." (paraphrased by me)
4.30.2009
In normal conditions, dealing with insurance issues wouldn't be too difficult...but when you are already trying to navigate your way through so many road blocks, it becomes emotionally exhausting. I can't tell you how many online applications I would fill out, only to get to the end, and find ourselves back where we started.
It doesn't appear I'm going to find an insurer who will cover my pre-existing health problems. One company suggested we also purchase a high-risk policy for me (like we had to do for Mike), but I'm not even sure they would accept my situation, and the cost would just be too much. So, we're considering just getting catastrophic coverage for me, and pay for the other as we go along.
Even though we haven't formally been guaranteed coverage for Mike's high risk insurance, we have completed all the paperwork, and things should be in place in a couple of weeks. Our former "Goody's" insurance ends today, so we were also on the phone with the high-risk insurer trying to figure out how to pay for the oral chemotherapy Mike needs to buy, to begin taking Tuesday. The oral chemotherapy is $3000 for this cycle, so we wanted to make sure that amount of money was going to be applied to our deductible with that insurer. That was all worked out. So that brought Mike a little relief.
I feel your prayers...........because some days, it would be too easy, to just lie down and collapse under the weight of it all. When we're overwhelmed, I just keep trying to move forward, and before I know it, I'm standing again, ready to face another challenge. So praise God, for His merciful hand and His daily strength, and thank you for being a shoulder we can lean on...and a warrior on your knees.
"My flesh and my heart fail; but God is the strength of my heart and my portion forever." Psalm 73:26
4.29.2009
We would appreciate your prayers for these treatments to be effective in reducing this tumor in Mike's liver. We would also pray that this Alkaline Phosphatase count would be significantly reduced. Mike's is at 2036. Normal range is 38-126. It is puzzling what is causing this. MD Anderson mentioned Mike could have a bone scan to rule out any problems, but they said the CT's didn't show anything troubling in that area. I guess Mike and I are exhausted from "chasing rabbits," and spending money that wouldn't end up changing the treatment anyway. I have inwardly wondered if the radiation has anything to do with this number being elevated. I didn't think to ask that question yesterday, but will on Tuesday, if we have a moment to speak to the doctor, or treatment nurse.
We have another prayer request we would appreciate prayer for. In trying to gain independent medical insurance for me (Beverly), we are being told I won't be covered for the first 12 months on any pre-existing conditions. We are searching with other insurance companies to see if this is their policy as well. I have a medical condition, in which I'm required to have labs every 6 weeks to monitor a drug I take, I see a specialist every 18 weeks and I take several medications daily. Having no coverage for me, for 12 months, is going to place us in a difficult situation. Please pray God will open a door for us.
Thank you for staying at our side and keeping us in your prayers.
"Cast thy burden on the Lord, and He will sustain thee." Psalm 55:22
4.28.2009
We've listened to Houston before, when they suggested testing for colon cancer and thyroid cancer. Both, (praise God) came back clear. But our medical insurance comes to an end Thursday, and we begin paying for our "high-risk" insurance for Mike. It's hard to know what to do with a second opinion, and who you should ultimately listen to. Mike and I have reached a point where we are physically, mentally, and emotionally worn out. It would just make things easier to trust our oncologist here than to keep on spending money to rule things out.
Treatments will begin next Tuesday morning. We will repeat labs again before the infusion, so maybe we can pray down this alkaline phosphatase count before then, and it won't be an issue.
Mike and I appreciate your thoughts and prayers, more than we could ever say. Just when we feel we can't take things anymore, we somehow find the strength and are lifted back on our feet. We know that isn't by happenstance.
"He giveth power to the faint; and to them that have no might He increaseth strength." Isaiah 40:29
4.25.2009
4.23.2009
Mike and I are home safely. Thank you for your prayers.
Our trip to MD Anderson was very exhausting and we didn't receive the news we were hoping for. Simply, Mike's tumor grew .7 of a centimeter larger with this scan. The doctors didn't seem alarmed, but suggested Mike begin treatment again. There are a couple of other things they are following, and keeping an eye on, but our largest concern is the liver tumor. They are wanting a specific lab reading to come down a little before they begin treatment.
The treatments will be done here in Russellville. The treatment will consist of one oral chemotherapy drug, and one IV drug every three weeks. They decided to use a different form of chemotherapy to cut down on the Neuropathy damage the past two drugs gave Mike. They told us we could always return to that in the future, but they thought something a little more easier, would be better for Mike now.
We are extremely tired, and would appreciate your continued prayers, as we press onward. Thank you so much for your love and support.
4.22.2009
Not much to tell...
Thank you for your prayers.
Amber Lacy
4.20.2009
4.18.2009
Mike and I would appreciate your prayers for our family this upcoming week. Mike will be having a series of tests and procedures in Houston and these trips always take a lot out of us. We are very grateful for your love and support, and hope to come home with a good report.
"Father, cover me with Your feathers, and help me to find refuge under Your wings. Let Your faithfulness be my shield and rampart. Help me not to fear the terror of night, nor the arrow that flies by day. Help me to make You, the Most High, my dwelling and let no harm befall me nor disaster come near my tent. Thank You, Father, for commanding Your angels concerning me to guard me in all my ways." Psalm 91:9-11
4.17.2009
Physically, things have been fine for Mike mostly this week, but we've both had a rough week emotionally. The journey has been long, and we just have a lot on our minds, as we prepare to head to Houston this week.
We appreciate your love, concern and prayers.
"Peace I leave with you....I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid." John 14:27
4.16.2009
Thank you for your continued thoughts and prayers.
"Trust ye in the Lord for ever: for in the Lord Jehovah is everlasting strength." Isaiah 26:3-4 KJV
4.14.2009
Mike actually woke up very early today and seemed to keep good pace with me. He was a little more worn out by the time Drew went home, but even still, he did well. Mike commented to me how it's so hard to put a couple of good days together in a row. We're always left guessing what we're dealing with each day.
Tomorrow, I will be interviewing for a job. It is going to be difficult for me to share my story and seek the understanding, and flexibility I need. I know I already have every one's thoughts and prayers. I'm so grateful for each and every one of you, and for all the love and support you give Mike and I.
"Save me, O God, For the waters have come up to my soul. I have sunk in deep mire, and there is no foothold; I have come into deep waters, and a flood overflows me. I am weary with my crying; My throat is parched; My eyes fail while I wait for my God." Psalm 69:1-3
4.13.2009
Today he went to physical therapy briefly, but came home early, and has gone back to bed. I don't quite know what to make of all of this. There is no fever...no visual symptoms. He's just tired. So I sit, and wait for him to wake up, trying not to let my fears get the best of me.
"Your Father knoweth what things ye have need of, before ye ask him." Matthew 6:8
4.12.2009
4.09.2009
Our Houston trip is coming up quickly. A little anxiety is beginning to creep in. We feel so out of control down there and every moment is a little scary. Mike will be having 3 scans (chest, abdomen, pelvis) meeting with 3 doctors (Radiologist, Surgeon, and Oncologist), have some xrays taken, and possibly have another biliary exchange, if needed.
Please pray that Mike will find his energy again, that he'll be well on Saturday to enjoy his family for Easter, and peace would wash over Mike and I as we prepare to head to Houston. We appreciate your thoughts and prayers very much.
"I will cast my cares on You, Lord, and You will sustain me." Psalm 55:22
4.06.2009
4.02.2009
"Then you will call, and the Lord will answer: you will cry for help, and he will say: Here am I." Isaiah 58:9
4.01.2009
It troubles me, how something so simple in Houston, can be so complicated here. It's the simple things...like the difference between the sedation they offer, the sutures and how comfortable Mike is after they are put in, the recovery time from the procedure, to even the care in between exchanges. If it weren't for the 8 hour difference, and the cost of traveling to Houston every two months, all of this would be less stressful having this done there. There are just two completely different ways of handling this, I guess.
Anyway, the stress from yesterday and last night, tired me out quite a bit, so I have been moving slowly this morning. I just wanted you to know Mike is doing better this morning. Thank you for continuing to keep us in your thoughts and prayers.