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In 2007, I began my original website, Sonshine's Haven. In 2007, it was turned into a blog and used to keep family updated on my first husband's fight with liver cancer. He passed away November of 2009. We were married for 34+ wonderful years and this journals some of that grief process I've gone through.

I have since remarried another widower, but Mike is missed dearly, and will always be a big part of my life.

At times, all of us will be called to act as witnesses to the suffering of another. We will be unable to affect the outcome physically. Words will fail us. Prayer will seem futile. And yet, the act of bearing witness to someone else's trials is a sacred sorrow that offers and astounding glimpse of eternal joy." by Ginger Garrett

"Being willing to stay with a loved one throughout their travail, can be difficult....YES! But offering yourselves as faithful companions on a dark and dreadful journey can be an unmeasured blessing." (paraphrased by me)

12.31.2008

Interruptions

“But the angel said to her, ‘Do not be afraid, Mary, you have found favor with God. You will be with child and give birth to a son, and you are to give him the name Jesus.’ ” Luke 1:30-31

Interruptions are inevitable. It’s just the way life works. But, I keep asking myself, why is it that they come at such inopportune times? After listening to a zillion options in the phone-answering menu, someone will start talking to me and I miss the key moment only to have to redial and go through the whole thing again! And who’s the bozo that always rings the doorbell just when the game-changing play is about to happen? Well, I guess we could learn to live with interruptions if it weren’t for the fact that some of life’s interruptions are disruptive on a far more serious scale—a phone call from the doctor giving you bad news about your cancer tests, that pink slip on your desk, the unexpected loss of a loved one, or an unwanted job transfer all stack up as devastating surprises.

Which brings to mind how Joseph and Mary must have felt when their lives were dramatically interrupted by angelic announcements. Their future was bright until the divine announcements threatened their sense of well-being to the core. If all you have is the Christmas-card mentality—Oh, how precious to see Mary, Joseph, and the child with angels fluttering over them!—then you’ve missed the magnitude of just how disruptive God’s interruptions were. What would Mary tell her mother, to say nothing of all the relatives and busybodies in her little village? Do we think for a moment that any of them would believe the story that began with “An angel told me . . .”? And for Joseph’s part, everyone would conclude that he had violated his fiancĂ©e’s virginity—which in those days would have been a damning breach of religious and cultural standards. Believe me, no one would want a “Kitchens by Joseph” sign in his or her front yard anymore!

Given the weight of it all, the amazing element in their story is that they both accepted the interruptions with a sense of resolved surrender. A surrender that put them in a place where God could accomplish far more through them than their uninterrupted lives ever would have dreamed of. Though awkward and challenging, God’s unexpected change in their plans gave them the honor of parenting the very Son of God. And our world has never been the same again—to say nothing of our lives!

There’s a lesson here for us. When God interrupts our best laid plans and expectations—even when it seems like the outcomes are devastating—He has a far greater thing in mind for us. God’s worthiness and glory is far more evident when it is expressed in the midst of suffering. There is no greater confirmation of the trustworthiness of God than when we trust Him even in the face of the unexpected insecurities and uncertainties of life. And who knows what He has in store through you in terms of impact in future generations when He rearranges your life? I can’t always tell you what God is up to, but I can assure you that He uses interruptions to do things far beyond what we ever dreamed.

So this Christmas, let’s get the point. When interruptions come, stop resisting. Surrender and start looking for the hand of God as you serve Him obediently in spite of the uncertainty that is staring you in the face.

I’ve often wondered: What if Noah had said, “I don’t do boats!” or if Moses had complained, “I don’t do crowds!” or if Job had insisted, “I don’t do suffering” or if Mary had declined, “No thanks, a virgin birth is too great a risk” or, ultimately, if Jesus had said, “I don’t do crosses!”?
Trust Him. He knows what He is doing with your life!
By: Joe Stowell (Daily Strength)

12.29.2008

All of our company have returned home, and the Christmas tree and decorations are all down. It was a blessed Christmas. Family were such a blessing, and friends continue to lift us up and share all their love and support.

We are grateful Mike has stayed well, and continues to do well, even though some of our out of town family became sick, and Amber is sick again. We continue to trust God in protecting Mike. Everyday I care for Mike's tubes, I'm grateful for one more day of them working correctly. That small blessing is such a precious gift.

Today was a little hard on Mike. I think having the distraction and activity of family for a week kept his mind busy and off of our situation. But now that we're back to the daily grind, the reality of things just seemed to be weighing heavily on him. There just doesn't seem to be any quick fix for any of this. I was thankful Mike, at least, had physical therapy to go to today.

Today was also a day when everything just felt a little bigger than me. I know a lot of it was in response to what I saw Mike experiencing. I question, at times, if I have what it takes to get through all of this. My heart feels it's being pulled in a million directions. I'm struggling, adapting to what each day throws at me.

I'm grateful that whatever kind of day faces Mike and I, we have such loving friends and family, that stand in the gap for us and cover us with prayer. Thank you for your continued love and support.

"Let him ask in faith." James 1:6

12.26.2008



It has been a wonderful Christmas! Mike has felt very good most of the time the past few days. He has napped when he could, and has been enjoying the children, grandchildren, and other family here to celebrate the holidays. We feel so blessed and are very grateful!
I wish you could have been sitting in the room with me when Mike tried out his new foot bath. He had asked for this, thinking it would help ease the discomfort in his feet from his neuropathy. It became absolutely hysterical when he first tried using it though, because he had the water temp too hot. The repeated efforts to stick his toes in the water cracked me up. Then Chloe, our Cocker Spaniel, became the show when she became curious of the new object. At one point she must have thought it was some high tech water dish...because she would try and sneek forward to get a drink, and then would jump back. After several attemps, Mike decided to get real cute and turned on the jets. I guess it doesn't take too much for Mike and I to be entertained! ;)


Ecclesiastes 3:4 (Amplified Bible) "A time to weep and a time to laugh, a time to mourn and a time to dance,"





12.22.2008

Merry Christmas

We were almost at the point believing prayer was going to be our only option to help Mike with his chemical imbalance, since we learned late last week that several of the medications that help with this, can be dangerous to the liver. We certainly have our hands already full with a cantankerous liver. :) But we learned this morning that there were other options we had, and Mike began taking his new medication today. Hopefully he will feel the benefits of it before too long. We've been told it can take 4-5 weeks before things will level out, and he'll begin to feel better. Besides this, Mike's other symptoms seem to be under control, and he continues to do well.

We have Mike's sister and brother-in-law coming into town this Christmas, as well as my sister and her husband. We know it will be a sweet time of fellowship as we watch Ethan and Drew celebrate Christmas, and just all of us being together as a family. We pray Mike's mom will be able to leave the nursing home she lives at, to come home and be together with us too.

I just want to tell all of you how much Mike and I love you for standing with us in this fight against Mike's cancer. Everyone of you have been helping us keep one foot in front of the other, most especially at times, when that was the most difficult thing for us to do. You have also given to us so unselfishly, with such a servants heart, and have shown us God's mercy and faithfulness through your loving hands. We are deeply touched by your kindness to our family. We pray God will doubly bless your lives this Christmas, as you and God have blessed ours.

"The work of praying is prerequistite to all other work in the kingdom of God. By prayer we couple the powers of heaven to our helplessness, the powers which can capture strongholds and make the impossible possible." O. Hallesby

With God all things are possible! Matthew 19:26

12.19.2008

Mike continues to do well. We praise God for His protective hand and all of your faithful prayers.

Mike's physical therapy sessions now last for 2 1/2 hours, 3 days a week. He feels he's slowly regaining some of his strength.

His weight remains stable. He's not gaining, but he's not losing anything either.

His stamina isn't back to where it use to be, so he quickly runs out of steam, but we are grateful he continues to make improvements.

Mike saw a doctor yesterday concerning some of the other things he's been struggling with, and they believe he has a chemical imbalance, and medication would help. So he should be receiving benefits from that in a week or so.

Last night we went to our Sunday School Class Christmas party, which was a progressive dinner. We were unable to attend all of it, but it was tremendous joy being with friends, celebrating the holiday season, and feeling "normal". This special "family" of ours has been such a blessing to us! There have been steady amounts of hugs, prayers, love and support from them.

You, our "family" as well, have been such a tower of love, support and strength for us too. What comfort you've given us, standing right at our sides, willing to do anything to make things just a little bit easier or happier for us. Mike and I feel deeply blessed. We love all of you. The gratitude within our hearts could never be measured. You have met every need of ours and beyond.

Celebrating His Faithfulness,
Mike and Beverly

12.16.2008

We are so thankful Mike hasn't caught the virus the kids and I have been battling the past week and a half. So far, he continues to stay well, and I am on the mend. I'm certain it's because of your prayers. Thank you so much! Zac, our son-in-law, is the last one to come down with the virus, but we're hoping he will be on the mend soon, and we can all be well for Christmas.

Mike's oncology appointment was cancelled today due to the bad weather we're having. The ice made it difficult for his doctor to come to town, so we will not see him again until after we come back from Houston in January. So far Mike's biliary tubes are functioning well. That's another praise!

I would appreciate your continued prayers for Mike beyond just the physical. There are so many facets to what he's dealing with. I pray the Lord would lift his heart and give him peace. Please also pray God will show me all I can do to help make things easier, or better for Mike. Your prayers and support continue to keep us strengthened.

"Let my cry come near before thee, O Lord: give me understanding according to thy word." Psalm 119:169

12.14.2008

Mike continues to ward off catching this virus, although yesterday afternoon, he told me he was feeling a little something in the back of his throat. The worst of it seems to be over for me. I have been going around the house disinfecting everything in sight, trying to protect Mike. I just hope we're successful. Thank you for your prayers.


"But faith will find its strength, not in the thought of what you will or do, but in the unchanging faithfulness and love of Christ, who has assured you, once again, that those who wait on Him shall not be ashamed." --A. Murray

12.11.2008

Thank you for your prayers. Mike is remaining virus-free. I'm much the same, and feel grateful for not feeling any worse.

Mike's countenance has been a little more lifted today. He went over to his shop this morning, cleaned his guns, and reloaded amunition. I'm grateful he can enjoy this hobby of his. Maybe if the weather continues to warm up a little, he will feel up to going to the range for a little while.

"Prayer is a mighty force, an energy that moves heaven and pours untold treasures of good on earth." E.M. Bounds

12.10.2008

It was probably inevitable, since Drew, Matt, Ethan, and Amber have all been, or are still sick. But I'm joining them, coming down with some kind of virus. So far, my symptoms haven't seemed as bad as the kids have been. I'm praying it will stay that way.

Please keep Mike in your prayers for protection, that he can either avoid getting sick, or not get it as badly as some in our family have. With tubes in Mike's abdomen, it would be very uncomfortable for him to begin coughing like the kids have.

Mike also has had kind of an off day anyway, unrelated to any viruses. He has been a little blue and a little tuckered out following his PT. They've increased his PT session to about 2 hours, from 1-1 1/2 hours. His feet (the neuropathy) have been troubling him and he's had trouble staying warm today.

Thank you for continuing to think about, or pray, for our family.

"When my soul fainted within me...my prayer came in unto Thee." Jonah 2:7

12.04.2008

Mike is continuing to do okay. He tells me he is feeling fine, and he is eating well. He is also continuing his physical therapy three days a week. I guess I would just feel a little better if I saw Mike gaining more weight, and if I saw his energy level increase. Doing much of anything seems to wear him completely out. He's good for about one hour of anything, before needing to lie down.

Some days it is hard for me to see Mike so easily tired. I have to remind myself of how well Mike's tubes are doing, and how less of a hassle they presently are for Mike. That he is keeping his food down, and feels well enough to even go to physical therapy. We have so much to be grateful for, and it's wrong to allow anything, to steal away that peace and joy.

I'm grateful to have friends and family who pray for us even when our hearts grow a little tired or discouraged from the journey, and when we don't even know how to ask for prayer specifically. You know our hearts, and you continue to hold us up. What a blessing!

"My helpless friend, your helplessness is the most powerful plea which rises up to the tender father-heart of God. You think that everything is closed to you because you cannot pray. My friend, your helplessness is the very essence of prayer." --O. Hallesby

12.01.2008

Mike was back in physical therapy this morning. His PT added three new exercises to Mike's routine, using weights. A lot of the exercises he is being given are for strengthening Mike's lower back, thighs and arms. Mike was ready to lie down once he got home. We learned last week that our insurance has approved as many PT sessions as necessary for Mike.

Everything with Mike's liver is functioning well since our last trip to Houston. We would love to relax, let our guard down, enjoy the holidays, and feel as close to "normal" as we can possibly feel, but it doesn't come easy. There is so much on our minds.

But our hearts are infinitely grateful for the love we have from our family, and the depth of unconditional love, and immense support we continue to receive from our friends. The measures of understanding you have, could only come by God's hand, and that leaves Mike and I speechless, and on our knees. You have been such a blessing to us.

"It is blessed to know of a place where we can lay our tired head and heart, our heavenly Father's arms, and say to Him, "I can do no more. And I have nothing to tell you. May I lie here a while and rest? Everything will soon be well again if I can only rest in Your arms a while." --O. Hallesby

11.28.2008

Mike has enjoyed several good days in a row. He continued with physical therapy Wednesday morning, and again this morning. The treatments wear Mike out but we both feel they are beneficial.

We have gone over a week now with zero problems with either of Mike's biliary drains. Having the right drain function properly, has given both Mike and I a gift, few could probably understand, or even appreciate as fully as we do. We continue to pray both drains will continue functioning properly, until the regular exchange mid-January.

Mike's appetite continues to build and everything is staying down, which is a blessing. We try to sneak in a vanilla or chocolate shake now and then, to help build up calories. Mike is still hovering around 147 pounds (up from 138- but down from 175).

Mike was able to enjoy a little reloading yesterday in his shop. He said the neuropathy has messed with his fingertips a little, causing a little numbness, but not enough to prevent him from doing this hobby. It has been so important mentally and emotionally, for Mike to do things that feel "normal" for him. The changes that have happened over the past 1 1/2 year in his life, have been a lot of the uphill climb for Mike. I would appreciate your continued prayers in this particular area.

"How good it is to know that when we come to Him in our need, we are coming to The One who came and gave His life for us." -Roy Lessin

11.25.2008

The oncology appointment this morning went smooth, and my heart remained peaceful. I'm so grateful for all of your prayers.

We discussed the past four months with our doctor, explaining all that took place at MD Anderson. He stated Mike had been through a lot over this time, by the reports he was sent, and how he found it amazing, this tumor ever got to Mike's liver in the first place. He felt the aggressive position we took the first year was helpful in shrinking the tumor, and although ultimately he would have liked to have had the tumor resected from the liver completely, he was satisfied to take a watch and see approach now.

He was glad Mike tolerated radiation treatments well in Houston, in hopes to completely sterilize or kill the tumor. The position now is to see Mike in three weeks to follow his blood work. The bilirubin count today was .8, which is very good. Everything else seemed within acceptable margins, as well. We will go to MD Anderson the middle of January for the complete workup again, and to see where we are at that point. If everything is looking good, Mike will likely wean off seeing doctors at MD Anderson, and return to only being followed by the doctors back here. Mike and his oncologist discussed the need to have Baptist Hospital in LR, talk with someone in Houston, to find what they did to make the biliary exchange less painful for Mike...and without general anesthesia, which led to the fiasco last July. A couple of simple phone calls should be all it takes. Mike plans on trying to have a conversation with the radiologists in LR soon, but hopefully well beyond the next scheduled exchange in January.

The situation regarding the blockage in Mike's subclavian artery was discussed. The oncologist told Mike that this blockage isn't affecting or involving his heart, and because he isn't showing any signs of trouble with his left arm, numbness, pain, etc,...and because a pulse can be felt in that arm, blood supply must be coming from another route, and it is probably best just to leave things alone. This was his opinion at least. Mike is scheduled to see the cardiologist at MD Anderson in January concerning this too, so we'll see what is suggested then.

So, we feel extremely grateful to everyone who has been involved in our situation, and just praise God this Thanksgiving, for being our strength and ever-present help in all of this. We have so much to be thankful for and the mercy and grace He has shown us over this year is a constant reminder He is at our side. But I just especially wanted all of you to know how grateful I am for each and every one of you too, for staying at our sides as well, and helping us face this day by day. We have drawn such strength and comfort from you, because of your prayers and love. Sometimes the hardest battle, is feeling alone in situations like these, and every one of you have reminded us often that we're not. Thank you from the bottom of our heart, and have a Happy Thanksgiving.

11.24.2008

Mike continues to improve. His appetite seems back to normal and when he stepped back on the scale last night, it indicated he had put on about 5-6 pounds. Whether that is true weight, or water weight, doesn't really matter to me. The scale heading in that direction helps me breathe a little easier.

Today Mike resumed physical therapy, and after an hour, he was tuckered out. I worried slightly when he came home and he layed down, wondering if he might have over done things, but he seemed better when he woke up.

Thank you for checking in on both of us today. As we continue to adjust to our new life, please pray God's presence will fill any empty places we might be wrestling with, and He will leave us His grace and strength to take things in stride, and face each new day. We will be seeing Mike's oncologist here tomorrow morning at 7:30. These appointments are difficult, and a little scary for me, so I would appreciate your prayers.

"We never need to be without hope. For as we look into the future with the eyes of faith, we will see that God is already there." Roy Lessin

11.22.2008

We're grateful for another good day for Mike! Once again, he was able to eat and keep all of today's food down, and he said he felt better than he has in a long time. Thank you for continuing to think about us and praying. Mike's looking forward to going to church tomorrow.

"Cast thy burden upon the Lord, and He shall sustain thee." Psalm 55:2
Mike kept everything down Friday, which was such a blessing. Thank you for praying for him. He didn't adhere to his self-imposed liquid diet either, which makes this even more of a blessing. He asked me to make him some mashed potatoes for dinner, which he hate maybe a 1/2 cup of, and he had some applesauce. Then around 8 p.m., he got hungry and had me make him some scrambled eggs and a piece of toast, which all stayed down. He also had a good nights rest (and so did I), so we have much to be grateful for.

Thank you so much for praying us through this bad spell.

"I pray that you will begin to understand how incredibly great His power is to help those who believe Him...." Ephesians 1:19 TLB

11.21.2008

Mike ended up vomiting again last night and had continuous indigestion and hiccups until morning. We both got very little rest. I tried talking Mike into seeing our family doctor today but wasn't successful. He finally allowed me to call the oncologist's office here in town. His nurse called about 20 minutes ago, after speaking with the doctor, and told us if Mike vomits anymore, we are to go to the emergency room and have him get an IV. He has an appointment to see his oncologist Tuesday. In the meantime, Mike has put himself on a liquid diet. I'm praying whatever this is, will fix itself quickly, so we don't end up with him in the hospital for Thanksgiving.

Thank you for continuing to pray for us.

"The Lord is our strength and our song." Exodus 15:2

11.20.2008

We made it home safely this evening from Houston. Mike had the right tube exchanged on Wednesday and handled everything well. Thank you for praying us safely down and back. I only missed a turn once and the car came back home without any scrapes. ;)

The Intervention Radiology team increased the size of Mike's right tube, although to the naked eye, it's difficult to see any change. So far, everything is working well, and Mike has not been in very much pain from that procedure. We were in and out of MD Anderson within 2 1/2 hours. We didn't want to risk Mike traveling, just following the procedure, so we waited until this morning to head home. Everyone is hoping we won't have any trouble until we see them again in January.

I do have a special prayer request for Mike though, concerning his weight. Since Sunday he has dropped another 8-9 pounds. He has been having trouble with his stomach feeling full even though he's hardly eaten very much, and last evening, he couldn't keep his only meal of the day down. I'm concerned, so I would appreciate your continued prayers for him in this area.

I would also deeply appreciate your prayers for me, for an extra measure of God's strength and grace. The past few days particularly, have been a little hard, seeing Mike so sick.

"I pray that you will begin to understand how incredibly great His power is to help those who believe Him...." Ephesians 1:19 TLB

11.17.2008

We are heading back to Houston tomorrow morning. Mike's bilirubin count was 1.8 today, which indicates possible blockage. We will be driving down, and the procedure will be Wednesday morning. We would appreciate your prayers.

"When we are going through tough times in our lives, Jesus doesn't stand on the outside of our difficulties. He is in the midst of each thing we walk through in life. He is there to speak peace to us, to calm the storm, to assure us of victory, and to walk with us into a new day." Roy Lessin

11.16.2008

Mike isn't feeling well today. He woke up with a queasy stomach, and with the exception of going to church, has slept most of the afternoon. We have reason to believe his right biliary drain may not be functioning correctly. We're doing all we know how, but we're feeling pretty certain that bloodtests tomorrow will show that we'll need to return for another biliary exchange. The big question for us, is whether to chance a successful exchange in LR, or to return to Houston?

We would appreciate your prayers for strength, and a lasting solution to this reoccurring problem.

"So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with My righteous right hand." Isaiah 41:10

11.14.2008

Mike continues to work hard at physical therapy. Today's session was a little longer. We went to Lowe's afterwards, to give him a large, warm area to walk around in. Since we've returned from Houston, Mike has had trouble warming up and staying comfortable, so this gives us another outlet to give him exercise.

At one point today when we were outside Mike looked a little jaundice to me. After my bringing it up, Mike shared he was concerned he might be a little yellow himself, so we called the doctors office to see if they might want to do some bloodwork to make sure everything is okay. Mike doesn't have the other general symptoms he usually gets when his bilirubin count begins to rise, so we're both hoping we're over-stressing and things are fine. The low fevers continue to happen at night but seem to be gone by morning. He will have some bloodwork done Monday morning just to be sure everything is okay.

"Don't worry about anything, but in everything, through prayer and petition with thanksgiving, let your requests be made known to God." Phillipians 4:6

11.13.2008

Thank you for praying with us about Mike's appetite and nausea situation. That seems to be improving, and Mike is keeping more and more food down. He is trying to add some snacks in between meals and seems to be tolerating it well. We don't believe he is gaining any weight yet, but we think he is maintaining his weight, according to our scale.

Tomorrow will be another physical therapy workout for Mike. He's been moving around slowly today because of Wednesday's PT workout. They had added a couple of exercises for him to do and he was pretty tuckered out by the time we left. I think more than anything, just having this to go to and do, helps motivate Mike. He's never been one to just lay around the house.

His energy level is still running low though, and that is causing some frustration for Mike. Little maintenance projects have been pushed to the side the last 1 1/2 years Mike has been sick, and even though I try to do as much as I can, there are a lot of projects just way over my head. Mike has tried to do some of the easier tasks, but wears out very quickly. Today, he was trying to repair something and was having the worst luck. He ended up having a mini-meltdown and it hurt to see him so frustrated.

Mike has been running low grade fevers almost every evening. So far, they have never been over 100 degrees, but they are enough to make him hurt all over, and concern me. We know if we were to call Houston (who have been involved in the last 3 biliary exchanges) they would probably have us come in to check for infection or even redo the tubes. That's not easy to do living here in AR. But both Mike and I are worried about returning to LR where previous exchanges have been done, because the last one there in July, put him in the CCU for several days. So, we're kind of feeling caught between a rock and hard place. We would appreciate your praying with us, that these fevers would stop! And that we can get through until January with no major infections.

"O Lord, be our rock of refuge, to which we can always go; give the command to save us, for You are our rock and our fortress." Psalm 71:3 (Praying God's Word)

11.11.2008

Leaning.........

Mike is doing okay. He has had some difficulty with his stomach feeling normal since we've been home, and has also experienced some eating changes, possibly due to a delayed reaction from the radiation and chemotherapy treatments he took for three weeks. He has experienced some instantaneous vomiting when he's feeling fairly well, and other times he'll have a craving for a particular meal at an unusual time of day, for example at 11 p.m. It's been pretty hard to plan meals, so we're trying to stay flexible until things level out a little for him. We're weighing him regularly and we don't believe he's lost any more weight since he's been home, but we'd really like to be adding a few pounds soon.

Mike began physical therapy Monday morning and will continue every Monday, Wednesday and Friday for at least three weeks. They are needing to take things slowly because Mike tires quickly. But he is getting a good hour workout, with scheduled rests in between.

Being home has been wonderful, but it is also becoming an adjustment for Mike. Not being able to do very much is frustrating him a little, and I can tell he is missing his job. Being in Texas was enough of a distraction that he never really dealt with the loss of his job until now. This week, he's just feeling a little out of place and discouraged. Please pray for God's peace and comfort, as he tries to make the adjustment to all of this.

We continue to lean on our faith to guide us through this journey and to work out every little detail that's before us. We would appreciate your continued prayers for protection, discernment, and wisdom.

"Lean on, trust in, and be confident in the Lord with all your heart and mind and do not rely on your own insight or understanding." Proverbs 3:5 (Amplified Bible)

11.09.2008

Angels In Our Midst

(Nedna)
(Margaret)

(Mei, Mackey, and a student nurse on far left)

I am posting a little late, but we're home safely. We arrived in close to midnight Friday evening. We spent most of yesterday washing laundry, opening mail, and loving on kids and grandkids. It is so good just to be home.
Mike is feeling good. Monday morning he will begin physical therapy and hopefully we can begin to put some weight back on him. He has about 25-30 pounds to add.

On Mike's last day of treatment Friday, they have this celebration where you ring a bell when you complete radiation treatment at MD Anderson, so I have included a picture of this. The people in the picture with Mike are the technicians that worked with him. There is one picture of a woman by herself. This was the radiation receptionist who greeted us everyday...twice a day....for three weeks. These dear people were "angels" in Mike's and my eyes. They all had such a loving, encouraging spirit about them, and they helped keep Mike's and my chin lifted daily. We felt so blessed by them, and just wanted you to have a chance to meet them too.

Thanks again for all of your prayers, love and support. You too, have been angels to Mike and I, in so many ways. Every single card, note of encouragement, drive to the airport, puppy care, gifts, calls, meals, love offerings, care packages, visits, and hugs, blessed us more than you could ever know. Your prayers have held us up and kept us going. We are deeply blessed to call you family and friends.

"And whatever you do or say, let it be as a representative of the Lord Jesus, and come with Him into the presence of God the Father, to give Him your thanks." Colossians 3:17













11.06.2008

Thank You

Thank you for praying for Mike and I today. Mike came through his biliary exchange well. Why it failed so quickly, they really aren't sure, but they have given us some suggestions we can try to help keep things from escalating so quickly the next time, and the change out wasn't as difficult for Mike today, which lightened my heart. The important thing is that radiation treatments didn't get missed, so we will be heading home tomorrow afternoon following his last two. Oral chemotherapy will end tomorrow as well. We won't return for scans or exchanges until the third week in January.

Mike and I are very exhausted, but it will be so good just to be in our own home, and to be near our family and friends. We want all of you to know, your prayers and help, have carried us through these past six weeks. We never could have made it without you. Thank you from the bottom of our hearts.

Love,
Mike and Beverly

"Come to Me, all you who labor and are heavy laden, and I will give you rest. Take My yoke upon you and learn from Me, for I am gentle and lowly in heart, and you will find rest for your souls. For My yoke is easy and My burden is light." Matthew 11:28-30

11.05.2008

Repeat Procedure

Mike will need to repeat the biliary exchange tomorrow at 2:30 because the right drain continues to malfunction. It has been a rough day, and I know tomorrow will require a lot from us. Thank you for continuing to keep us in your thoughts and prayers.

"Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, Who comforts us in all our tribulation, that we may be able to comfort those who are in trouble, with the comfort with which we ourselves are comforted by God." 2 Corinthians 1:3-4

11.03.2008

Good Outcome

Thank you for praying for Mike and I today. It was a little rough waiting and wondering what might be going on with Mike's right side, wondering what the diagnostic doctors would decide to do to correct the problem, and if whatever they decided to do, would make Mike miss his afternoon radiation treatment.

Mike had his procedure a little later than scheduled. (around 1 p.m.) They suspected either the tubing was too close under the surface of the skin, or the radiation treatments might have been causing inflammation. They decided to go ahead and completely redo his right biliary tube, but they were able to keep Mike comfortable during the procedure, and hopefully we'll get the results they are looking for. He had to remain in recovery longer than we wanted, but they called ahead to radiation on the main campus, notifying them we would be getting to treatment 2 hours late. Mike and I didn't breathe a sigh of relief until he came out of his treatment, realizing at that moment, we were going to be able to keep on our schedule to come home this weekend.

Again, thank you for praying us through today.

"Blessed are those who keep His testimonies, who seek Him with the whole heart!" Psalm 119:2

11.02.2008

Blessed!


On Saturday, Jeff and Lisa treated us to Houston's famous Burger spot, Pappa's Burger's. It was such a great time and the burgers were delicious!
Our friends and family have been such an incredible blessing to us. It has certainly made all of this a little less frightening to endure, and God has shown himself to Mike and I, through all of them. How incredibly blessed we are!
Mike began running a fever early Sunday morning (4 am) and having some discomfort on his right side. We got nervous and attached the drainage bag to Mike's right biliary tube, even though the clinic here taught us to keep it capped off. But we were worried there may be some infection. It could be that tube isn't in the correct position so that might need to be exchanged tomorrow around noon. If that happens, it is going to be causing us a little trouble getting to Mike's afternoon radiation treatment on time (2 p.m.). So please pray with us that all of this will work out as best as possible, and all of this won't delay our coming home Friday.
I'm SO ready to be home! I have already been packing which Mike has been enjoying teasing me about. He's convinced I make too big of a deal out of this process, and he's probably right, being I brought so few clothes for myself this last trip.
It will be wonderful seeing our family and sleeping in our own bed, but I may actually kiss my washer and dryer, once we reach the house. That's one item I've definitely taken for granted over the years, and missed down here.

Thank you for continuing to encourage us and letting us lean on you. Our hearts are so incredibly grateful and your prayers keep us going.

"But I will hope continually, and will praise You yet more and more. My mouth shall tell of Your righteousness and Your salvation all the day, for I do not know their limits. I will go in the strength of the Lord God; I will make mention of Your righteousness, of Yours only." Psalm 71:14-16

11.01.2008

Answered Prayer!

Overnight, the reservation office extended our stay to the length of time we needed it. What an answer to prayer! This is such a blessing and will make things so much easier and safer for us. Thank you for taking part in lifting this request to God.

"Thanks be to God who gives us the victory through our Lord Jesus Christ." 1 Corinthians 15:57

10.31.2008

"Your Sustaining Grace"

Mike now has twenty radiation treatments behind him, with only ten left to go. He has been handling them well. He gets tired at times, and it takes him a little time to get going in the morning, but I have seen him more like himself this past week, than I have in months. The chemotherapy medication tends to be what gets to him the most, but we seem to take the edge off of the side effects by having him take the anti-nausea medication along with the chemo drug.

Mike saw the radiation physician this morning and we momentarily got our hopes up, when they handed us a new schedule, showing that radiation treatments ended next Wednesday. We were really hopeful that was true, especially since Mike only had enough oral chemo pills to last until Wednesday as well. But, when the doctor looked it up in the computer, we learned that treatments would go through to next Friday afternoon and we would need to stay the extra two days. :(

Mike's weight continues to stay up, with him even gaining another 1/2 pound. They told us most patients end up losing about 7 pounds during this type of treatment, which Mike really couldn't afford to lose; so maintaining, or even gaining a little weight during treatments, is something to celebrate. One other tidbit they shared was that Mike's blood work showed Mike's white blood count was a little elevated, and they asked Mike if he experienced fever or other symptoms, but when he said he hasn't had any trouble, they dismissed it being any problem.

Mike also saw his surgeon today. Plans were discussed for us to be back down here in late January for more tests, and to also exchange biliary tubes. Mike and I are still trying to cope with the idea that this will continue to be a part of our future, but we're grateful God has provided a better solution for these down here.

Speaking of this....Mike will be seeing the diagnostic team Monday morning to check out Mike's right biliary drain, to see if it is properly in place. There has been a minor problem with it the past two days, so it was recommended by Mike's surgeon today, to have this double checked. If it shows that it needs to be replaced, Mike will have to undergo an exchange, of only that one side. So, with that being at 11 a.m. Monday, we are hoping it won't interfere with Mike's afternoon radiation treatment, delaying our trip home any further. This is something we would appreciate your prayers regarding.

We are also needing your prayers concerning our lodging. The hotel we are staying at still has no vacancies and our reservation will be running out after Monday night. All of the hotels in the medical city area are booked, so the only place we could find with vacancies, is quite a distance from the clinic. Needing to have two treatments a day, this makes things a little inconvenient for us. But...it doesn't leave us homeless. ;) It just would be very helpful if we could remain where we are at, and we would appreciate your prayers for an opening.

This has been such a long journey, and we're looking so forward to coming home. Thank you for praying us through this winding road. You have been such an encouragement and help to us.

"May those who sincerely seek You find genuine happiness and fulfillment, and may they express their joy in proclamations of praise to You. As for me, I always need Your sustaining grace. O God, do not withhold it from me." Psalms 70:4-5/Psalms Now

10.29.2008

16 Treatments Down - 14 To Go!

Mike continues to do well while receiving his radiation and chemotherapy treatments. He had a doctor appointment yesterday and they marveled how well he is tolerating things. They seemed especially impressed with his appetite, and noted that he had gained 1 1/2 pounds since last Friday.

Following his treatment this morning, we had the shuttle take us to Mike's physical therapy evaluation. We told the shuttle driver the address we had been given, but he took us where he thought it was. So after dropping us off and the shuttle driving away, we got inside and learned we were at the wrong location. So we had to call the hotel, to get the shuttle to come back for us. We eventually got to where we needed to be.

My heart was broken once we arrived at the physical therapy clinic. All around us were patients in such difficult situations; many in wheel chairs, some barely able to walk. And so many of them were children or young adults. I felt extremely blessed, and was incredibly impressed with how well staffed this treatment center was, and the individual care these patients were receiving.

Mike's technician was named Kristine and she was remarkable with Mike. She did all of these different tests on Mike to determine if he qualified for therapy. Some were joint and range of motion assessments, and then she did an equilibrium-balance assessment on Mike. This study had Mike standing in a balance machine, harnessed in by the shoulders. Then the sides or front of the enclosure would move in and out, or the floor would tilt, and Mike was expected to adjust himself to stay upright as much as possible. I was sitting in a chair behind Mike and the technician, and was relieved it wasn't me in there, because just watching Mike made me dizzy!

The printout then averaged a bunch of scores and it showed that Mike did have some areas that needed to be addressed and improved on. Because the evaluation paperwork takes a little time to be approved, it may end up that Mike will have only one session of treatment down here in Houston, and the rest may be done back home. But either way, I think Mike will truly benefit by this. It was one of those appointments Mike almost cancelled, but I'm so glad he didn't.

Anyway, we're doing well, and appreciate your prayers.

"Greater love has no one than this, than to lay down one's life for his friends." John 15:13

10.27.2008

You Never Let Go

Today was treatment 11 & 12 (out of 30) for Mike, and he felt well all day. Our sprint over to where he takes his treatments is quite a hike from where we're staying, and we had to make that journey 3 times today, so I was quite impressed how well Mike did. I had trouble keeping pace with him, so he seems to be regaining a little strength.

Today we met jointly with an oncology counselor to discuss the changes that have come into our life lately. Mike saw her alone last week and then he wanted to bring me into the meeting today to "help keep him honest". We were trying to work through the disappointment with the surgery, the loss of Mike's full health, the layoff from his job, and how things in our future might change because of all of this. She gave us some suggestions on coping with these changes, and then led us through some relaxation exercises.

Later in the afternoon we took a shuttle to a grocery store, but got stranded for over an hour waiting to be picked back up. The weather in Houston today was cold and windy, so I made Mike stay inside the store, as much as possible, while I waited outside. It has taken most of the evening for us both to thaw out back in our room. We may think twice the next time we take the shuttle somewhere.

We are in the process of trying to do absentee voting while we are here in TX. We never thought we would have been gone for this long, and we almost gave up trying to work out all the details, but Zac and Amber did a little research and was able to help us with this. So hopefully, we'll be able to take part in the election.

How you can be praying for us: Continue to trust God for healing for Mike and for the side effects to be minimal from these chemotherapy and radiation treatments. Pray that we will be able to come home when these treatments are completed, and there will be no more delays. (we're a little homesick as you can imagine) Please pray a room reservation will open up for us between November 4th and 7th, or we might be homeless! ;) Please pray that Mike and I will stay well. In a place this vast, with so many people around, the last thing Mike and I need is to come down sick. (I'm always chasing Mike down with antibacterial gel, much to his dismay.)

We are so grateful for all of you, who continue to think about us and lift us in prayer. You have carried us through some deep water and you could never know how deeply you have blessed us.

Song Below: "You Never Let Go" by Matt Redman

10.25.2008

A Pretty Autumn Day




Today was a perfect day to sit outside and enjoy a good book. Mike is presently reading "Big Russ and Me" by the late Tim Russert.
Mike has the weekend off from taking any cancer treatments. He is looking forward to a visit with his friend Jeff, tomorrow. They plan to watch a little football together after lunch.
Thank you for your continued prayers.
"My loving God, You are truly gracious to me. You have not cast me aside or allowed me to be destroyed. You know that I honestly want to serve You. And You have demonstrated Your acceptance and concern for me by sustaining me and drawing me even closer to Yourself. May God be praised forever!" Psalm 41:11-13/Psalms Now



10.24.2008

One Week Down!

With the exception of the first two days this week, Mike has done a lot better. We think we stumbled upon an answer for keeping these new treatments from being miserable for Mike. The doctor confirmed we were on the right path this morning. It seems to work for Mike, to take his anti-nausea medication along with his chemotherapy pills, even if he's not feeling nauseated, and to also take his pain medication right before his radiation treatments, instead of waiting after. With the exception of the first two days, Mike has done much better this week. Mike finishes with treatment #10 today, which leaves him with twenty more to go.

Mike met with the nutrionist this morning and she was helping Mike with different ways to add more calories, and more protein, to his daily intake. She told Mike he needed at least 66 grams of protein each day, because it was necessary for building and repairing body tissue that radiation is destroying. She was encouraging Mike also, to increase his calories, because if he doesn't maintain at least 1980 calories per day, his body will use any protein in his body, as his energy source. She wants Mike to at least retain his present weight, and if possible, increase it. I don't think I've ever heard a nurse promote McDonald's milkshakes before, but that happened to be one of her suggestions for adding 500 extra calories to his diet.

We heard back from the cardiologist yesterday. They have decided to table any procedure to remove the blockage in Mike's subclavian artery, because they would rather him just recover right now from his abdominal surgery, the chemotherapy, and the radiation treatments. They plan to see Mike before we leave Houston and will discuss things further with us then.

We have appreciated all of the love, prayer, and support we have received from so many of you. Everything has been more bearable, having an army of friends and family, in battle alongside us. Thank you for that comfort.

"Greater love has no one than this, than to lay down one's life for his friends." John 15:13 NKJV "Truly I say to you, to the extent that you did it to one of these brothers of Mine, even the least of them, you did it to Me." Matthew 25:40 NASB

10.23.2008

An Outing in Houston

Mike felt well enough to get out this afternoon and take a shuttle to Barnes and Noble. He spotted a Quizno's and had his favorite sandwich for dinner. Hope you enjoy this brief snipet of video of him.

10.22.2008

"Peace I Leave With You"

Mike's day was a little better today. This mornings treatment had him feeling a little puny, but his afternoon treatment went better. We haven't been able to figure out if it is the radiation treatments, the chemotherapy pills, or both, that is causing the problem. We're just thanking God for any improvement, big or small, he has. Thank you for continuing to keep us in your prayers.

Tomorrow's routine is much the same as today's. On Friday, Mike will see the radiation doctor, and the nutritionist, in addition to his treatments. So maybe he can help us figure out what may be causing Mike's problem, unless it's something that will eventually just improve with time.

"But the Comforter, which is the Holy Spirit, whom the Father will send in My name, He will teach you all things, and bring to your remembrance all things that I said to you. Peace I leave with you, My peace I give to you; not as the world gives do I give to you. Let not your heart be troubled, neither let it be afraid." John 14:26-27

10.21.2008

New Treatments Hitting Hard

The new treatments (oral chemotherapy and radiation) are hitting Mike pretty hard...pretty quickly. He has felt extreme fatigue today, and he has needed the anti-nausea medication to settle his stomach. He has been unable to do much more today than sit, or lie down, with his eyes closed.

We would appreciate your prayers for God's protection.

"With the living and eternal God as my goal and guide, fear and anxiety need have no place in my life. All the evil in the world cannot destroy Him nor can it destroy anyone within His loving embrace. I have one primary and ultimate desire; to abide within the love and acceptance of God. Within His tender care I know I am safe." Psalms 27:1-4/Psalms Now

10.20.2008

Insurance Problem Resolved

We are relieved; our insurance problem seems to be resolved. We were finally able to pick up Mike's chemotherapy medication this afternoon. He's behind one dose, but we don't think that will be any problem. Thank you for praying with us about this. We're just grateful everything got worked out. In our situation, not having coverage was a very scary thought. The Cobra paperwork is on it's way to us now and we will get it filled out and faxed in ASAP.

Our hotel situation may be improving too. We learned this weekend there were some charges on there mischarged to us, so we got those removed. We also learned that after 31 days, we will begin to receive a discount rate, and Mike believes that is retroactive. It will helpful if it is. Right now, our reservation is through November 4th, which isn't quite as long as we need, but we again are on a waiting list and will just trust God to provide for us.

Mike had his first radiation treatment this morning. Everything went fine. It lasted a little over 35 minutes but we've been told from here on out, it will be for less time, like around 15 minutes long. He will be going back for the evening treatment around 5 p.m. They are splitting up Mike's doses like this because of his past limit with radiation. He's already had so much, that they felt this would be easier for his body to tolerate. We were told today his treatments will go through November 7th, an extra couple of days longer than first said.

Because Mike was unable to pick up his medication on time, he will begin his first chemotherapy dose following his evening radiation treatment. On Tuesday's and Friday's, Mike will have an additional meeting with a radiation doctor, just to keep a close eye on things. This coming Friday Mike has also been scheduled to meet with a nutritionist and will likely be placed on a high protein diet to help bring his weight back up. A social worker is also scheduling for Mike to have physical therapy once a day, which will take place off campus.

We did turn in Mike's wheelchair today, which was turning a big corner. Mike walked all the way to his treatment this morning, and will again this afternoon, which is going to be great exercise and rehabilitation for him. I pray that he will continue to gain strength and improve.

We still have not heard when the heart issues will be revisited. The last we heard was that a female head and neck specialist will be talking with us soon and that a surgeon will get in contact with us, but so far, we have heard nothing. Although we would like to get the heart issue resolved, it is also bringing us some extra anxiety, with it resolving itself following everything else.

We are already incredibly homesick and want to get back near our family & friends, and home. Going through something like this is so much harder when you're away from the familiar, and you're limited to emails and phone calls. We are missing our kids hugs, church, puppy-dog smooches and grandbaby screams....and I'm getting very tired of wearing the same 5 outfits day after day! ;) I don't mean to sound unthankful for getting the help we are, because that continues to give us hope and a future; but we really need some refueling.

Our Houston "family" have been such a blessing to us down here. Jeff & Lisa and Howard & Toni, have been spending a little weekend time with us, taking us shopping or to dinner. They are keeping us sane!

Thank you very much for keeping us in your thoughts and prayers. They have been a great encouragement to us, and your friendship and love keeps us going.

A Quote from Dwight L. Moody, "Of one hundred men, one will read the Bible; the ninety-nine will read the Christian."

10.18.2008

A Quiet Day


Here are a couple of pictures of the new view we have. I became quite interested this afternoon in the huge crane over the MD Anderson complex. Today, about five men were up at the top of that tower, dangling off of it, working on it. I was amazed how fearless they were.
We've had a quiet day. We only ventured out once, by taking the shuttle to a nearby Target Superstore, to pick up a few groceries. I pushed Mike around the store in a wheelchair, to keep him from wearing out too quickly, but he lost patience with me after I kept steering him accidently into the racks, so he ended up walking. I think I wore him out, because after we returned to our room, he slept for 3 hours.
We would appreciate your continued prayers regarding our problem with our medical insurance coverage, and with Mike's upcoming treatments beginning Monday morning. We know God holds all of these things in His hands, and we can rest in that, but at times, everything begins to weigh heavily on our minds. Thank you for continuing to lift us up.
"Be strong and of good courage; be not afraid, neither be thou dismayed: for the Lord thy God is with thee whithersoever thou goest." Joshua 1:9

10.17.2008

A Bump in the Road

So, first thing this morning we went to the GI clinic for an appointment at 8 a.m. with the surgeon, only the surgeon was in surgery and didn't end up seeing us. We met with his physicians assistant and received a 15 page report on their time caring for Mike. He looked at Mike's open wound and told us we need only to pack it for one more week. I told him I was trying to follow the Home Health nurses advice, and try to pack the wound tight enough to have it adhere to the black "scab" inside the wound, so that when I removed it each changing, it would pull out the bad tissue. That's when I learned the black "scab", wasn't a scab at all. It is sutures. No wonder they weren't coming out. They are self asorbing. The Home Health nurse told me incorrectly. So I think we're going to take care of this wound ourselves for the last week. We were given the option of seeing the surgeon another day but I think Mike is ready to move on.

From the GI clinic we went to the Cardiology clinic to meet with the doctor who did the heart catherizations and who has put Mike on his new beta blocker heart medication. (Topral) We waited to see him, because we were having trouble getting the MD Anderson pharmacy to fill another hospital's prescription. So Mike's doctor was coming to MD Anderson this morning anyway, and just decided to meet us there to write the prescription out on the MD Anderson prescription pad to take care of everything.

While we were waiting for him, we got a call from MD Anderson saying they were trying to get authorization for the CT Scan Mike's oncologist wanted done today, but were told our insurance coverage was cancelled. Here it is Friday, with treatments starting on Monday. That CT was needed before Monday. So Mike got busy trying to make calls back to Goody's to find out what in the world happened. They thought they would have things resolved in a hour. Mike called MD Anderson back and was told to go ahead with the CT scan, they would get authorization later.

So we were heading back to our hotel, because Mike was going to have his CT in a location directly across from our hotel. We decided to stop in the lobby to ask for an extension on changing rooms until after the CT scan was done. Only, we found out that the conversation Mike had yesterday with the front desk, didn't end up reserving a hotel room like we thought it did. Some one goofed up and promised something to us that they didn't really have. Mike didn't take that very well, and a supervisor came up trying to figure out what was going on. She eventually changed us into a room we could keep until November 4th, but that's all she could promise, and we had to change out the room immediately. So I walked Mike across the street to where he needed to be for his CT scan, and I came back to the hotel and packed up everything, and moved us. Problem solved.

After Mikes scan I needed to run back over to MD Anderson and fill four of his prescriptions. I waited the amount of time they suggested it would take, but our name never got called. I waited and waited and finally just returned to the hotel, figuring I could come back this evening since they were opened until 8 p.m. After dinner, Mike and I decide to walk over to get Mike's medications only to find out that we had no insurance coverage for those either. Mike's chemotherapy pills alone were $1500. We told the attendant to keep the medication, that we would return on Monday before the radiation treatment's began, to see if things got ironed out with the insurance company. But we did go ahead and pick up Mike's heart medication and just paid the cash price for that, so he could start on lowering his heart rate again.

I'm trying to find the good in all of this, but it's not very easy to do. The stress surely isn't healthy for either of us, and it's catching up to me quickly, after an already stressful week with Mike's biliary exchange and heart catherization. But, we have to take what we're given, and just do the best we can, and that has been our goal, and continues to be. Tomorrow will be a better day, I'm sure.

We truly appreciate the prayers of so many of you, and the support you continue to give us. We are so humbled by your thoughtfulness and kindness. Please pray that this next week might go more smoothly. I know Mike is really concerned about how painful his radiation treatments might be, being during the simulation last week, he was in a lot of pain stretching his abdomen out so flat, with his arms over his head for a long period of time. The new chemotherapy side effects might be mouth sores, nausea, and finger tip discomfort. The goal we were told today, is to "sterilize" the tumor. More radiation for Mike is a huge risk, so we pray the doctors hands will be guided divinely, and that no further damage will be done.

"O God, I want so much to please You, to walk in Your ways, and to carry out Your purposes. Nothing is as important to me as being in the center of Your will and living with Your design for my life." Psalms Now/Psalm 119

10.16.2008

Mike is Doing Better

Mike is feeling fairly well today. He felt well enough to walk over the skybridge to his oncology appointment this afternoon, instead of using the wheelchair. He walked very slowly, but he did well. The bandages can be removed from his artery locations tonight. His cardiologist called this afternoon to see how Mike was doing and mentioned the next procedure to fix this blockage wouldn't be for 4 weeks. Mike got to thinking after the call, this would mean we'd need to stay in Houston longer than we thought. Tomorrow, Mike needs to see him briefly to pick up a prescription, so he is going to ask him if we could move it up close to the 5th of November so we could get home sooner.


Mike's abdominal pain is coming well under control as he continues to heal from the surgery. He is taking a lesser strength of pain medication and stretching out when he takes it also. The open wound is still "open", but I guess it is doing what it's suppose to be doing. We'll know better tomorrow morning when he sees his surgeon. Home Health care hasn't been too dependable, but I'm becoming more of a pro at caring for it, so it's working out alright. It's not my favorite thing to do, but I can do it.


Stress keeps challenging Mike and I but we're giving it a good fight. Today, we realized our hotel situation wasn't working out in our best interest, so we scrambled trying to find an alternative solution being we would have to get out of here Monday morning. After running into a lot of "no vacancy" problems (we're guessing because of the displaced citizens still from Hurricane Ike), we finally found a room back at the initial hotel we stayed at last Dec./Jan., but that wasn't an ideal location because it is farther away from MD Anderson. Because we don't have transportation, and Mike begins radiation treatments twice a day on Monday, Mike decided in a last ditch effort, to ask the hotel we're presently staying at, if they had any other rooms available, even if it meant we had to pay a little more. We figured they didn't, since they have been aware for almost 1 1/2 weeks now that we needed to extend our reservation. But they told us they did have another room available, which is at a higher rate. Still, it is the better solution, so we'll be moving into that tomorrow. Right now, we need peace of mind....not worrying about how we're going to get back and forth.

So we resolved one problem only to have another one pop up. Today Mike saw the oncologist. She will be giving Mike an oral form of chemotherapy (Xeloda) while he receives his radiation treatments. This particular doctor isn't the most positive of doctors Mike has, because she is requesting Mike to have another CT tomorrow, to see if the cancer has spread anywhere. She "doesn't want to waste our time", having radiation therapy if it has spread. But, that's okay...we'll do the extra CT for her. So, Mike and I wanted to see how much the oral chemotherapy was going to cost us, being pharmaceuticals are figured out differently with our insurance company than IV forms of chemotherapy. So we got online trying to check out the price and we saw we had no access to that information because "our insurance coverage ended October 4th". I'm sure you can imagine how we felt to read that. Of course, it was after business hours when we found this, so we'll have to wait until tomorrow to resolve this issue. Mike's sure Goody's will help us resolve this.

Tomorrow we have an appointment with the surgeon and a CT scan scheduled at 1 p.m. Please pray this will show the tumor hasn't changed (unless it has become smaller) and that it hasn't spread to anywhere else, so they can continue to treat Mike.

"And the peace of God, which passes all understanding will keep your hearts and minds through Christ Jesus." Philippians 4:7

10.15.2008

Blockage Found- Updated

(In the picture above, it shows a vertical, black line, which is the catheter coming up through the groin. Coming from the right, or the patients left arm, is the catheter they placed in Mike's arm. The ink pen is pointing to the blockage, which they estimate is about 2 inches long.)

The heart cath. procedure this morning lasted approximately 2 1/2 hours because they found a significant blockage in his subclavian artery. My dad was awake the whole time, but didn't feel any pain because his blood pressure was good and more pain medication could be given. They tried two different locations to use different sized wires to break it up but were unsuccessful. Right now he is still in a room resting as they plan on sending pictures to another doctor of his blockage to determine if they can do surgery or a laser procedure after his radiation is finished. My mom will update me later if she hears anymore and if I got any information incorrect I will be sure to clarify later.

Thank you for your prayers.
Amber
(After lying still for 5 hours, they finally allowed Mike to be released from the hospital. He is doing well. The comment the cardiologist made, is that it is puzzling someone at Mike's age would have this much blockage, without any numbness or pain in his left arm. They are trying Mike on another heart medication to try and bring the heartrate down until surgery can take place, but he has to take his bp everyday to see if he can take it. If his bp is below 100, they do not want him taking it.
Tomorrow is the meeting with the oncologist to discuss if Mike will have any chemo, along with radiation treatments. We appreciate everyone's prayers. So much is coming at us at once, but your prayers and God's grace is sustaining us.)

10.14.2008

Heart Catherization Tomorrow

Mike has a 10 a.m. heart catherization scheduled for tomorrow at the same hospital he had it done before. Our understanding is they only plan to go in and look, but he's been told to pack an overnight bag just incase.

Today, Mike got a free trim and shave at MD Anderson. He didn't have a whole lot needing to be done, but it made him feel a pinch better to be tidied up. This is such a wonderful gift the hospital offers to cancer patients. They even offer free wigs to women undergoing treatments. It has been frustrating down here at times, but there are many things MD Anderson is doing right.

Mike's biliary tube exchange yesterday seems to be working better than his previous ones. We know it is still early, but if he needs to have this done every 3 months, going through the procedure without too much pain, and fewer problems, is a step in the right direction.

Thank you for keeping Mike and I in your thoughts and prayers.

"Be of good courage, and He shall strengthen your heart, all you who hope in the Lord." Psalm31:24

10.13.2008

Things Went Well

Just wanted to let everyone know Mike's biliary exchange went well today. We got back to our room a little while ago. Mike's nauseated, so he's in bed right now, but everything went smoothly. He was awake during this procedure, which helped him to recover more quickly. His blood pressure was up enough (118/75) to allow them to give him enough pain medication, to be comfortable and awake during the procedure. Everything is the same as his last set of tubes, except they capped off both tubes before we left recovery, and told me not to put the drainage bags on unless Mike began running a temp, had pain or any bleeding. I pray these new tubes work better. Mike is still trying to adjust to the idea of having to keep these. Your prayers for him are very needed, especially in this area.

We never heard back from cardiology about Mike's Wednesday appointment for the heart catherization, so we're not for certain that is going to take place or not. Mike's resting heart rate today was way up to 118, before his procedure. That was a little spooky to me, but the nurses here didn't seem concerned. When we left recovery it was down to 107 beats per minute. I'm praying one of these cardiologists can figure out this problem before we leave Houston.

Radiation treatments will not begin until next Monday. They will be done twice each day, Monday through Friday, for a couple of weeks.

Thank you for praying for protection and strength for Mike today, and for comfort for me. Your love and concern has been such a blessing to us!

"Let Your tender mercies come to me, that I may live, for Your law is my delight." Psalm 119:77

10.12.2008

Some Time Outside



















Mike felt well enough to go outside for a little while today. He's having a little trouble standing up straight with the different wounds on his stomach, and I'm sure his procedure tomorrow might only add to this discomfort.


Mike's Home Health nurse suggested today, we get a velcro binder to use around Mike's middle, to help give him some support in that area, especially when he's trying to walk. I'm going to look into it tomorrow when the Clinic opens. She also lectured Mike on eating better. She started by encouraging him to eat more fruits and vegetables, but went on to suggest protein drinks for him, to supplement regular meals. I'm not sure we're going to get very far with that advice.


Thank you for praying ceaselessly for Mike and I. There is such a battle raging to remain steadfast, trusting, and encouraged. This can be difficult when you are healthy and you're surrounded by family and friends, but it can be more difficult when you're not feeling well and you're away from home. I'm so grateful remembering we're not in this alone, no matter where we are, and that so many of you care deeply about our situation, and are staying on your knees. That strengthens me daily and is such a blessing!

"He giveth power to the faint; and to them that have no might He increaseth strength." Isaiah 40:29

10.11.2008

A Shopping Run




Two of our friends from Houston, Jeff and Lisa, came to visit us today. Jeff use to work with Mike in Russellville over 10 years ago, and his sister now works for our daughter-in-law, Jill, in Russellville. While Mike and Jeff visited at the hotel, Lisa ran me up to the Super Target. I was able to pick up a few groceries, and a couple of other things. Our challenge was figuring out what we could pick up that could be cooked in a microwave, and fit into a tiny freezer sized for a couple of ice cube trays or a small refrigerator. We came out of the store fairly successful. Tonight we had some lasagna that wasn't half bad.

Mike felt pretty well today but is still moving around a little slowly. I think he's getting a little frustrated with his healing process, but to be fair, he's comparing things to how he use to recover when he was 30 years younger. I think it's going to take a little extra time, especially when they need to keep working on things like his incision, tubes, etc.

I snapped a couple of pictures of the view out our window this stay at MD Anderson. Being here longer than we wanted, I'm thankful to have such a large window to look out of and see a beautiful sky. I'm missing home a little bit. Yesterday it dawned on me that I hadn't been outside for 8 days. I've crossed the skybridge several times, and have "seen" the outside, but hadn't actually stepped outside with the air on my face. I'm hoping Mike and I can get outside tomorrow or sometime this coming week. There is a beautiful little walking garden, smack in the midst of all of these tall medical towers. To sit out there, makes you forget where you're at, and lifts the heart a little.

Mike's procedure to replace his biliary tubes, begins at noon on Monday, so please keep him in your prayers.

"Someday everything will make perfect sense. So for now, laugh at the confusion, smile through the tears and keep reminding yourself everything happens for a reason." (This poem was written on a white board on the hospital floor Mike was on.)

10.10.2008

Keeping Us Guessing

(Updated)
Just as I joked about in yesterday's update; there's been another change. I think they want to keep us guessing down here. :)

We did go for the radiation simulation this afternoon as scheduled, but radiation treatments won't actually begin until Monday, October 20th. Instead, they want Mike to go ahead with having his biliary tubes replaced Monday at 1 p.m., and have the heart catherization on Wednesday morning, at Memorial Herman Hospital again. On this new schedule, it doesn't have us finished here until November 5th.

Mike has been in a lot of pain since the simulation today. On the CT/PET scanner, they had to stretch Mike completely out, with his arms up over his head, to lie still while they made a cast cradle form for his body, for when the treatments begin. Just following surgery, and with his biliary tubes and the newest incision, he was incredibly uncomfortable. They had to come and get me to help him sit up and it hurt to see him in so much pain. I pray all of this is worth it one day.

We have a minor issue we need to solve and could use your prayer about. Our hotel reservation is only through this coming Thursday. We have tried to explain the situation to the Rotary House, about Mike receiving radiation treatments until the November 5th, but they have told us they are booked. They told us to check day by day to see if there are any cancellations. Well, worrying about that isn't helpful. With Mike being in a wheelchair, and our not having a car, staying anywhere else is going to be more difficult. So we would appreciate your prayers that something will open up for us to remain here where we're at. (Prayer is already being answered. The Rotary has added four more days to our reservation and plan to keep adding days as cancellations come in. PTL!)

The Home Health Nurse came today and gave me a passing grade for changing Mike's wound. I didn't know when they were going to show up so I just jumped into gear and took care of it this morning. She came around noon and undid the dressing to doublecheck my job. They will be coming by everyday for the next two weeks, helping me out so I will only need to change it once daily. Thank you for praying me through this challenge. I don't think I would ever make a good nurse, but I now know how deep a wound can be without anything falling out. ;)

Mike and I are learning so much about faith in God, the depth of family love, and unconditional friendship. We are so fortunate to have so many dear people praying for us and caring about our situation. Thank you for being such a support to us.

"Because he cleaves to Me in love, I will deliver him; I will protect him, because he knows My name. When he calls to Me, I will answer him; I will be with him in trouble, I will rescue him and honor him." Psalm 91:14-15

10.09.2008

Riding an Emotional Rollercoaster

This morning we received a phone call from the cardiologist who came to Mike's hospital room last night with two other cardiologists, barely keeping his feet on the floor, to announce Mike's heart problems were only because he was dehydrated. There were NO heart issues. It sounded too good to be true, and it's possible it was. This morning they let us know a head and neck specialist took a look at the MRA and may have seen a blockage. The radiologist didn't see one, but this doctor disagrees. They would like Mike to have another heart catherization to rule it in or out. Unfortunately, it is going to need to wait. Mike told him radiation treatments were beginning Monday and all procedures (including the tube replacement) will have to wait until they are over.

These kind of experiences are really beginning to wear on Mike and I emotionally. To get our hopes up so high, only to dash them is painful. We already have enough we're trying to deal with. But these rush decisions seem unnecessary and wrong, especially from an institution this large. Anyway, it's there and we're going to need to deal with it. It will just need to wait for now. Our challenge now, is to not let the joy we felt yesterday, be squelched.

As Amber reported yesterday, Mike will be starting radiation treatments Monday. (Or at least he's scheduled to ;) We go tomorrow for what they call "simulation", which is to CT Mike and draw on his body the exact location the radiation will be directed to. They may, or may not, make a cast or cradle that will keep Mike's body in the same position during treatments. Then on Monday he will begin treatments twice a day. Once in the morning and once in the afternoon. These will be Monday through Friday for the next three weeks.

The group we met with yesterday seemed so positive and optimistic about being able to help us. Mike and I are praying they will be successful. Even though we don't have past records, the doctors feel they have enough information by what Mike and I were able to share, to go about this safely. We aren't so much placing our trust in them, as much as we are placing our hope and trust in God. He knows what's best for Mike and I.

This, of course, means we'll be in Houston much longer than we anticipated...and if biliary surgery and a heart catherization is added to that, it extends that time out even further. Mike and I are already a little homesick, so please pray these weeks will pass quickly and will be successful.

Mike was discharged today from the hospital. He ended up with a bacterial infection in his incision, so that needed to be reopened about 3 inches, and needs to be packed with gauze, twice a day, for two weeks, until it closes on it's own. They have trained me to do this for at least one of changes he has daily. Home Health is suppose to do the other change. I'm not a nurse, so this is really difficult for me. It's not easy to look at, but I think I can do it to help Mike get better.

I'm sure it's obvious how we can use everyone's prayers. We're needing to dig very deep to stay positive and not let everything discourage us. We may take advantage of some counseling at the hospital, just to learn some better ways to help us with some things medically, etc.

We're very grateful, despite the little disappointments that have sprung up. Thank you for praying for us. I'm convinced you help us keep one foot in front of the other daily.

"O Lord, You are my light! You make my darkness bright!" 2 Samuel 22:29

10.08.2008

God is Moving Mountains

That's what my mom said when she called me a minute ago. First she was reporting to me that a team of radiologists came to see my dad and were looking at his "tattoos" to determine where his past radiation treatments were aimed and asking many questions about his past treatments. They are very positive they can help him and he will begin targeted radiation treatments starting next Monday, twice daily for 15 minutes for 3 weeks. He will also see an oncologist tomorrow to talk about beginning some chemotherapy as well...she will be the one most likely who will determine if his tubes will be replaced.

As my mom was on the phone, she had to call me back because another team of cardiologists came in to speak with my dad about his results....and here's the kicker....there is absolutely nothing wrong with his heart that they can see....NOTHING. They say he is extremely dehydrated and if he can drink about 1 gallon of fluids daily he should recoup fine.

God is moving mountains. My sister-in-law put it this way in her blog..."I wonder sometimes if we don't see present-day miracles, because we don't have the faith to ask God for the otherwise impossible?

I've been pondering that myself and praying for a miracle for my dad. I am praying that God will use these trials as way to show Himself to those who are lost...whether it be at the hospital or in our very own family. God has always provided for my family, even through the hard times. I'm also praying that through these trials I will learn the lessons He is trying to teach me and to grow from this in faith. I'm not as gifted with words as my sister-in-law or my mother, so I will let my medium, which is music, speak the words I'm trying to say. (Click on song below.)

The pathway is broken
And the signs are unclear
And I don't know the reason why You brought me here
But just because You love me the way that You do
I'm gonna walk through the valley If You want me to

Cause I'm not who I was When I took my first step
And I'm clinging to the promise You're not through with me yet
So if all of these trials bring me closer to You
Then I will go through the fire If You want me to

It may not be the way I would have chosen
When You lead me through a world that's not my home
But You never said it would be easy
You only said I'll never go alone

So when the whole world turns against me
And I'm all by myself
And I can't hear You answer my cries for help
I'll remember the sufferin' Your love put You through
And I will go through the valleyIf You want me to



Earlier:
My dad will not be discharged today most likely. They will be partially reopening his incision due to infection. I'm not sure what they will be doing exactly, but my parents mentioned they would be "packing" the incision and doing a wet/dry bandage of some sort. I do not believe it is very serious but these complications do set back his recovery. They still do not have the results back from the tests the cardiologists did last night. If I hear more, I will try to update since my mother is having a difficult time getting the hotel internet connection to work properly.

Thank you for your prayers.

10.07.2008

A Long Day

Just returned to my room this evening. Mike's MRA test was extremely late tonight, not returning him to his hospital room until 10 p.m. They were suppose to get him at 6:30 p.m. and things kept sliding all evening because they were busy.

Mike felt much better today. His stomach was settled and he was able to get up more easily. He seemed ready to go home, if it hadn't been that his MRA test was scheduled for 7 p.m. The cardiologists agreed with the surgeons that another day in the hospital would do Mike no harm. So I'm expecting Mike to be discharged tomorrow. His incision still seems to have a little redness surrounding it, but they continue to give him antibiotics to help with that.

Tonight's test will help the cardiologists finalize how they want to handle Mike's heart issues. All day his blood pressure has been around 120/70. But his heartrate has gone up too...between 102-104 beats per minute. I wish there would be something they could do to bring these levels closer to their goal. They have begun giving Mike an asprin a day but I don't know if that will be the only suggestion. We may know more tomorrow.

We still have no information when Mike will meet with the radiologists to redo his biliary tubes. There is a part of us, that would just like to forget about them for now so we could return home. But Mike has a hope that these radiologists here, might do them differently, and make them less uncomfortable. Yet, that would mean we would need to come back to Houston every 2-3 months to have them redone. It is difficult making these kind of decisions, to make a commitment to a medical group 8 hours away.

On Thursday, we will be meeting with a new oncologist here, to discuss any options we may have. We would really appreciate your prayers for this appointment in particular. We're unsure if they will recommend us to see anyone about radiation therapy.

Mike and I are really trying to sort out how we need to proceed once we leave MD Anderson. Our plate is overflowing with so many challenges, medical and otherwise, that we're quite overwhelmed trying to figure out what we need to do. Please pray that we will have the wisdom necessary to make good decisions.

Thank you again for your prayers and support.

"Call unto Me, and I will answer thee, and show you great and mighty things, which thou knowest not." Jeremiah 33:3

10.06.2008

Binding Wounds

Today began with challenges for Mike. The nurses had trouble controlling his pain and he felt sick to his stomach a few times. They decided to add an additional antibiotic to Mike's IV meds today; one for his actual incision, which Levaquin may not help. All day long, they were closing off access to his port, and then re-accessing it with a different medication. It kept going through my mind that Mike didn't seem ready to be released from the hospital, and he almost seemed worried about leaving.

Around 11 a.m., two female cardiologists came in to speak with us. They reviewed Mike's situation, the concerns of the cardiology team, and what additional tests they wanted to do to see if they could improve anything. Mike spoke to them of his concern of being released today, and they seemed to agree that he should remain in the hospital.

It is sounding like we're receiving the same summation of Mike's heart condition as we did with the liver situation, that past radiation treatments have rendered us problems, and damage. The cardiologists are going to be doing a MRA tomorrow, which is a more detailed study of the arteries between Mike's carotid arteries and the aorta, to see if there is blockage and/or stenosis. They also did special labwork to check Mike's adrenal glands for any hormonal imbalances, which required 3-4 timed bloodtests today. They are holding all heart medication until they can exhaust what they are really working with. The schedule as of now, is an appointment this Thursday with an oncologist, and an appointment Friday, with Mike's surgeon. Things keep getting shifted around, I think to keep us guessing. :) Mike may be released tomorrow or Wednesday from the hospital. When, or if, his tubes will be redone is up in the air. We were told it would take place, but that doesn't always mean it will happen.

Please pray that God's peace would rule every place in our heart and mind. Please pray we will find God's strength to get back on our feet, and focus back to living God's will for our lives. Please pray we'll have Divine wisdom and understanding, not just here in Houston, but also when we return home. And as always, thank you for caring so deeply about our situation and pleading to God on our behalf.

"He heals the brokenhearted and binds up their wounds." Psalm 147:3

10.05.2008

God is the Strength of My Heart

The word this morning was that Mike would be released from the hospital tomorrow morning. But, it looks like that won't be happening until later in the day. The cardiologists have asked to keep Mike longer until they can get together to discuss how to treat Mike.

All of Mike's catheters and hoses have been removed, and the IV in his port is the only one remaining. He is still receiving antibiotics. He is tolerating a regular diet well. They weighed Mike this morning and he's now down to 146 pounds. We will need to work hard to gain his weight (175 lbs.) back.

The cardiologist came by this afternoon and confirmed that Mike has a narrowing in his carotid artery due to past radiation treatment. This doctor will be meeting with Mike's original cardiologist, here at MD Anderson tomorrow, to determine how they will proceed. The medication they are presently giving Mike, to lower is heart rate, and to improve the contraction of the heart, is lowering his blood pressure too. So there is discussion about medications that can raise your BP, but which may hang on to sodium better than the other. I'm not sure I'm understanding, or appropriately translating all of this medical jargon, but I'm trying. One thing that almost made my own heart stop, was when the cardiologist was chatting with Mike about his past treatments, and how he was surprised Mike didn't end up with Leukemia as a result from past treatments. I wanted to say, "our plate is full enough, thank you."

So, that is where we stand at the moment. Mike's healing well from the surgery. We're working on the issues with his heart and with his tube replacement. And I suppose before we leave, we will have received recommendations on how to continue treating Mike's cancer.

Mike is handling all of this a little better each day, although it still overwhelms him and shuts him down at times. When those periods occur, everything becomes more difficult for me. But I think we're making progress trying to cope.

Football is on today so Mike is happy as a clam. Thank you for not forgetting about us, or giving up hope for our situation. We need your prayers and support as much now, as we ever did before, to learn to live with this.

"My flesh and my heart fail; but God is the strength of my heart and my portion forever." Psalm 73:26