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In 2007, I began my original website, Sonshine's Haven. In 2007, it was turned into a blog and used to keep family updated on my first husband's fight with liver cancer. He passed away November of 2009. We were married for 34+ wonderful years and this journals some of that grief process I've gone through.
I have since remarried another widower, but Mike is missed dearly, and will always be a big part of my life.
At times, all of us will be called to act as witnesses to the suffering of another. We will be unable to affect the outcome physically. Words will fail us. Prayer will seem futile. And yet, the act of bearing witness to someone else's trials is a sacred sorrow that offers and astounding glimpse of eternal joy." by Ginger Garrett
"Being willing to stay with a loved one throughout their travail, can be difficult....YES! But offering yourselves as faithful companions on a dark and dreadful journey can be an unmeasured blessing." (paraphrased by me)
5.31.2009
When I came home from church today, he had just eaten a plain bagel, and developed terrible indigestion. He tried Gas X, Rolaids, Prilosec (which he is prescribed to take), and even tried Miracle Mouthwash, being there is Mylanta in it. Nothing has helped ease his discomfort or the pressure. Sometimes the indigestion is accompanied by hiccups...which makes the whole ordeal very miserable for Mike. I decided to bag his drain, in hopes that maybe that would relieve something. There was a good amount of blood at first, then it stopped draining altogether. I don't know what to think about that. I'm going to leave the bag on, just to see if we're able to get anything more. We will likely call the oncologist in the morning to see what he thinks.
Mike is at his wits end, understandably, and I'm trying to navigate my way through this with him, without his losing patience with me.
I praise God there is no fever, no jaundice (that I can visibly see), and no nausea. I praise God that we have insurance and I have a job now. I praise God that He is keeping His hand on Mike, the children, and I, even though bad days try to keep us upside down. I praise God for friendship, family and the power of prayer. I praise God that so many of you continue to read this nightmare of a story, and aren't chased away from reading it, so you can pray specifically. Your hugs and smiles sooth a wounded heart. I praise God for sending many of you to our side to help us bridge difficult financial burdens. Your gifts continue to bless us over and over in our hearts. I praise God that no matter how awful all of this is, or feels, God is still present at our side, and promises that it will never be more than we can bear....although at times, I question we can take anything more.
"I sought Him who my soul loveth." Song of Solomon 3:1
5.30.2009
5.29.2009
We never did hear anything back on the labs taken yesterday, so unless they plan to give us that information on Tuesday morning, we're hoping everything is well within the limits necessary to continue with treatment.
Our son-in-law, Zac, will be giving us a hand tomorrow in trimming back our trees along the driveway. The trees have really become overgrown the last two years. I've never operated a chainsaw...and may look a little scary trying to figure one out. So we might seat Mike in a lawn chair, safely to the side, to help give Zac and I a little direction. You might remember us in prayer concerning this project. :)
"Rejoice in hope; be patient in affliction; be persistent in prayer." Romans 12:12
5.28.2009
Mike has returned back to his "new normal," of falling asleep once he takes his oral chemotherapy. It's likely because he takes Phenagren before the Xeloda, to prevent him from getting sick to his stomach. The Phenagren knocks him out. I suggested he try a half dose of the Phenagren, but Mike is afraid if he happened to get sick even once, he'd have a difficult time taking the Xeloda from there on out.
He went to the lab today and had blood work drawn, but we don't have any results on that yet. When we were at MD Anderson last fall, we learned of a side effect some cancer patients experience, called Chemo-Brain. The last couple of days, Mike has lost his memory of what he had been doing during the day, which is really concerning me, especially since I'm not around to keep a close eye on him. He, Amber and Ethan went to IHOP for pancakes this morning and when I came home from work, he was wondering why he hadn't eaten any breakfast all day. So, not only had he forgotten that he ate breakfast with Amber; he didn't even remember driving himself to IHOP and back home. I'm sure this is probably because of all the drugs he's taking right now, but I pray that's all that's going on. Please pray he doesn't accidentally overdose himself on his medications, or do anything that would cause himself any physical harm.
Mike had an old friend from Goody's, stop by and visit him this afternoon. Mike was so excited to see Rob. Rob had taken a position out of town after Goody's closed, but things didn't work out there, and now he is back in town hoping to find something here. He hung out with Mike for a couple of hours. Mike had such a huge smile on his face when I came home. I am so grateful God is helping Mike pass time while I'm away.
Thank you for thinking about Mike today and for keeping us in your prayers.
"A friend is one to whom one may pour out all the contents of one's heart, chaff and grain together, knowing that the gentlest of hands will take and sift it, keep what is worth keeping and with a breath of kindness, blow the rest away." --Arabian Proverb
5.27.2009
Mike did have a mini meltdown while I was gone today though, when our new insurance company informed him that his Xeloda ($2000 oral chemotherapy) prescription wasn't covered under the plan. I can just imagine his reaction. He learned this person was incorrect, but not until he shook out of his skin trying to get to the bottom of things. He had recovered by the time I got home from work. He was able to go to the pharmacy and pick up his second cycle of Xeloda to begin taking tonight. I'm praying his reaction to it won't be as severe this time around.
Mike was called by the oncologists office to come back in tomorrow morning for more lab work. Evidently, they didn't use the specimen from Tuesday to run the TSH test, so they will do that tomorrow.
Thank you so much for praying for Mike and our family. You're lifting our burdens, and carrying us through some very deep water. God continues to bless us through your friendship, and with His grace and His mercy.
You will find an update on Beverly below, under Reflection.
"Holding the heart of another in the comforting hands of prayer is a pricelss act of love." -Janet L. Weaver
5.26.2009
They didn't seem concerned with Mike's low blood pressure. It was 90/50 this morning at the doctor's office. Mike had lost weight, but we already expected that, being he has been sleeping through meals lately.
The doctor didn't see any reason why Mike couldn't go ahead with treatments, so Mike had another infusion this morning. He is sleeping the Benadryl and steroids off right now. The doctor said that the Xeoloda is probably what is causing Mike the most trouble in treatments right now...but with Mike's "bring it on" attitude, the doctor felt this was the key in Mike being where he is at.
Mike's sense of humor is such a gift! He is such a clown when he goes into the treatment room. As soon as he enters he can be heard down the hall, giving everyone a hard time, and cracking up the patients. He swears the nurses in there, quickly and purposely, hook up his IV first, to shut him up and make him fall asleep. He even accuses them of doubling up his Benadryl dose for that reason. I believe with all my heart that God is using Mike in that treatment room, lightening the heavy load so many are carrying in there.
We learned Mike's new medical insurance ID number when we were at the doctor's office this morning. So Mike officially has insurance now...even though we're still waiting on the packet to come in the mail. The office was able to look up the information on the computer. That helped Mike and I let out a huge sigh! What an answer to prayer, to have him covered again.
Tomorrow, I begin my new job. Please pray for my adjustment, and for Mike's protection while I'm away from him.
Mike and I are so grateful for all of the "angels" in our life. Each one of you have lifted our load from time to time, and you could never understand the depth of the brush marks you have left on our hearts. We're so blessed!
Thank you for all of your prayers!
"I would have lost heart, unless I had believed that I would see the goodness of the Lord in the land of the living. Wait on the Lord; be of good courage, and He shall strengthen your heart: wait, I say, on the Lord! Psalm 27:13-14
5.25.2009
Memorial Day Get Together
God gave Mike strength to enjoy our family time together for Memorial Day. I figured a video was better than a bunch of words.
Tomorrow we see the oncologist. Thank you for your love, prayers, help, and support.
His fever went back up a pinch when he went to sleep last night, but it is down this morning. His blood pressure continues to be low. I was worried when he developed yesterday's fever, so I tried to bag his drain, but barely anything came out. This is concerning me. It may only be, because he's dehydrated. But I'm concerned it might also mean something more. I have attached the bag again this morning and I'm getting the same result. I've decided to leave it on while Mike's sleeping today.
We have plans to be with our children and other family late this afternoon, if Mike is able. He is hoping for enough energy to enjoy his grandsons. I appreciate your prayers so much.
5.24.2009
Mike has continued to stay in bed. He got up to take a shower when I got home from church, but he was dizzy and needed to lay back down. He eventually was able to get up and finish showering. His blood pressure is low...97/46 and his pulse was up 111. He is running a temperature around 101. It came down a little when he got out of the shower.
Mike finally ate something after I came home from church. He ate some coffee cake and had some hot tea, I had set out for him this morning on his nightstand. Just a few minutes ago I was able to get him to eat some scrambled eggs and toast. His stomach looks less distended this morning but this fever concerns me. Mike tells me he feels better today but feels very weak. The sores in his mouth and on his lips have improved and are going away.
Mike is being insistent on waiting until Tuesday, to see or call any doctor. I think I'm realizing I can only get him to do so much. Thank you for keeping us in your prayers.
"All God's angels come to us disguised." --James Russell Lowell
5.23.2009
I would like nothing more than to be worrying about nothing, and be wrong. I would appreciate your prayers for Mike to improve overnight, or to agree to have things checked out in the morning. Thank you so much for your prayers.
5.22.2009
Tomorrow Mike is signed up to take a class that goes for the entire day. I'm thinking he was VERY optimistic when he enrolled for that. But, whatever interests him and puts a smile on his face-puts a smile on mine. I hope he'll have the strength and energy tomorrow to enjoy it.
Mike's sores seem better today. His mouth sores on his lips look very bad, but he says they look worse than they actually feel. The other sores on his arms and face seem to be getting less noticeable. I think they actually were worsened when he got in the sun the other day. He is suppose to be avoiding the sun while he's on these drugs.
Thank you so much for praying for Mike to feel better. I think God is answering that prayer with Mike being up and moving around today.
"For I am the Lord, your God, who takes hold of your right hand and says to you, Do not fear; I will help you." Isaiah 41:13
5.21.2009
It's painful seeing him hurt. He aches all over and is incredibly weak. It's painful looking at him. He has red blotches and sores popping up all over his skin. He continues to struggle with his appetite. It's almost a relief watching him sleep, because he isn't suffering. I'm really worried how Mike is going to be able to continue on with these treatments, if they should begin back up this coming Tuesday.
I know I don't even need to ask for your prayers. I know we have them. Thank you.
5.20.2009
The mouth ulcers are still a problem but Mike said they actually look worse today than they feel. He has had less problem swallowing. That is an answer to prayer!
His appetite dropped this evening because he is experiencing his stomach feeling full, when he hasn't eaten. He also has had trouble "bottoming out"...basically losing his strength quickly while doing something. I'm pretty sure his counts are low, but thankfully not so low to need the Neulasta injection.
Mike has made a couple of comments the past week that have been difficult for me to hear. He has shown a lot more frustration that this is what his life has become. He made the comment to me that his career is over, that he's realizing that he'll probably never work again. I think the months he was off chemotherapy, he felt energetic enough to stay busy with something and dream that this may eventually get better. Now, with the added hurdle of dealing with these side effects, he seems a little discouraged.
I can't blame him. I have my moments too. The life we had is hardly recognizable anymore. Today I was doing lawn work and so much was going through my mind as I rode the tractor. Building this home was such a dream for Mike and I. We poured our heart and hard labor into doing a lot of the work ourselves. We were a team and we enjoyed the challenges it brought. Now, it takes everything I've got just to keep up with everything around here, and I see so many areas that need attention. I found myself so overwhelmed in thought, that I had to stop myself. I don't know how we'll get through all of this, outside of just taking things one day at a time. When I think too far down the road.......I only end up discouraged and feeling defeated.
So, please pray for Mike and I, to receive another measure of God's grace, so we can continue walking down this scary path, trusting God intends it for our good.
"O Lord, be my rock of refuge, to which I can always go; give the command to save me, for You are my rock and my fortress." Psalm 71:3
5.19.2009
Yesterday was sort of a train wreck, because my disease flared, and I was virtually useless to Mike. We both slept the entire day. Mike had been up until 5 am because he couldn't sleep. I was just a mess. All I had enough energy to do, was pour some cereal in a bowl, or warm up some Clam Chowder for Mike's dinner. Then I was back down again. That's the first time this has happened since Mike's been sick. I hated the helpless position it put me in. But....we're both doing better today.
Mike had labs done at the hospital this morning. I guess if anything is needing attention, they will call us. In the meantime, he's off treatment until next Tuesday.
One good piece of news is that we finally received a letter from CHIP today, saying Mike has been approved for insurance, effective May 1st. So now, we only need to wait for the information packet to come in the mail. My application is still waiting to be processed.
Thank you so much for your help, and your thoughts and prayers. I don't know where we would be without them. You have been such a blessing to us!
"Every experience God gives us, every person He puts into our lives, is the perfect preparation for the future that only He can see." Corrie Ten Boom
5.17.2009
"Be of good courage, and he shall strengthen your heart, all ye that hope in the Lord." Psalm 31:24
5.16.2009
Mike will only have labs on Tuesday and then will be off all chemo for a week. I pray he recovers quickly and I'm so thankful he can take a small break. Please keep him your prayers.
"Love always protects, always trusts, always hopes, always perseveres." 1 Corinthians 13:7
5.15.2009
For the first hour, following the procedure, Mike seemed fine. I thought the exchange was the fix we needed. But we quickly returned home, because Mike was feeling weak, tired, and was hurting pretty bad. He slept all the way home.
Once home, he became chilled and I noticed he had a fever of 100.7, so I got him into bed. I have been concerned, but Mike won't let me call the doctor. I tried to explain to him that his blood counts are probably low from his last treatment, and we shouldn't mess around with a temperature...but I'm not getting anywhere. I'm trying to get him to drink fluids, but he tells me he feels too full and can't. We do not have the emergency prescription of antibiotics (we usually have) to give to him, because we didn't receive insurance approval yet, and Mike wouldn't buy it. So I'm praying God will protect Mike overnight and bring this fever down.
Please pray with me that he'll be safe and will improve overnight.
5.14.2009
Overnight, Mike and I made the decision to call LR to schedule another biliary exchange for him. Things only seem to be worsening on his right side, and we would just be delaying the inevitable if we waited. We are disappointed these tubes lasted less than one month. The tube exchange will be done at 1:30, tomorrow (Friday) afternoon. If sedation isn't used, we should be home by late afternoon. Please pray that Mike's blood pressure stays up enough for them to give him pain medication...to keep him comfortable during the procedure. He always has low blood pressure, but if it dips too low, they have to use the pain medication sparingly. Mike is feeling very weak tonight. He never got out of bed today until he knew Drew (our grandson) was stopping by. When they left, Mike went back to bed. I think we're dealing with biliary trouble and side effects of chemotherapy at the same time.
We have an answer to prayer! I had a second interview yesterday, for a church administrative assistant position, I had applied for a month ago. I received their offer this morning for the job and will begin at the end of this month. They are fully aware of our situation and need.
I want to thank all of you who were praying with me about this possibility. God continues to provide and care for Mike and I, and many of you have been His hand in doing this. Mike and I could never thank you enough for your love, concern, and support. We only know God will bless you, as you have us.
Please pray for Mike's protection while we're at the hospital tomorrow. With his counts being so low right now, I worry having him around so many who may be sick.
"Therefore humble yourselves under the mighty hand of God, that He may exalt you in due time, casting all your care upon Him, for He cares for you." 1 Peter 5:6-7
5.13.2009
Mike's side is very tender this evening which is a sign of infection. We're also having a lot of drainage. I'm concerned because the risk for infection is high for him right now, according to all the paperwork we were given for his new treatments. The good thing is that tomorrow our oncologist is in town, so we can get the antibiotic, or care quickly, if need be. But I would really appreciate your covering Mike with prayer for protection. (Our daughter is also sick today, so we're keeping Mike away from her.)
We did at least confirm today that CHIP has received all the paperwork on Mike for insurance, but things are still being processed s-l-o-w-l-y. It's making things a little unsettling, fronting the money, but we're being told it will all be retroactive. God also is providing and taking care of our needs, even before we know we have them. He's right at our side!
I will likely cancel my rheumatology appointment June 1st, because Mike's application was in 2-3 weeks before mine was sent in, and judging by his processing time, mine may be on some one's desk longer. Mike's was a guaranteed acceptance, due to his history with cancer. Mine wasn't. I'm not going to chance losing money.
Today has been a little exhausting. Interviews usually can be. I wanted to do well and I was hoping and praying to communicate clearly. Mike treated me to a pizza this evening at Brick Oven....and there was this little sign over our booth that read "Life is not about waiting for the storm to pass. It is about learning to dance in the rain." We're coming up quickly on our 2nd anniversary of this storm. At times it has been absolutely grueling and we didn't weather it well. We still struggle some days, just praying for a release from this pain. But I'm finding God wants to keep us here a little while. So I guess we can glorify God and learn to dance in the rain.
5.12.2009
Mike's blood counts were within boundaries to go ahead with today's treatment. His RBC was low but it was only recommended for Mike to boost it by eating some liver. (hmmmm! I'm not crazy about cooking that!)
The treatment went very quickly. We were in and out of there within 2 hours. Mike remarked to me, "How can it be doing anything, when I'm in and out of there so quickly?" I guess he just can't get past, how his former treatments lasted 5 hours.
Following today's treatment, Mike came home, and slept until late this afternoon. He appears a little pale to me since he woke up. Maybe once he really gets moving around, that will improve. He has been steadily becoming more fatigued as the days have been going on.
Next Tuesday, it will only be labs. He is on a 2 week on; 1 week off, treatment schedule. So he won't be taking any chemotherapy pills or infusion for that whole week. Then he is suppose to repeat the cycle another 3-4 times before another CT scan is ordered. Actually, MD Anderson has us returning July 1 & 2 to be scanned, but Mike hasn't decided if he'll go there, or just begin having scans repeated in LR.
We still haven't received any word on our medical insurance. We anticipated it being awhile before I was accepted, or declined, but Mike's approval was suppose to be within 7 days, and it has been longer than that. So, we're praying this will be completed this week.
We're truly grateful for your thoughts and prayers.
"Come to me, all who labor and are heavy laden, and I will give you rest." Matthew 11:28
5.11.2009
5.10.2009
The fever Mike had the other evening quickly dissipated. I really feel it was mostly caused by Mike being wrapped up in a heated throw most of the evening while watching TV. He becomes so cold at times that he overheats himself under heavy clothing or blankets. I do have a small concern that an infection might be developing though, just by a few side effects I've seen.
Other than these couple of things, Mike is doing pretty well. Thank you very much for your thoughts and prayers.
"Blessed are those who give without remembering and receive without forgetting." --Author Unknown
5.08.2009
I know this may come across odd...but it was so wonderful going to Higginbotham Center today, and having Mike sitting in the waiting room WITH me. We had to wait over an hour to be seen, but they took him back briefly, when they were ready, and he was out of there in no time. I have had too many negative experiences at that place since Mike's cancer returned. For a brief moment I could pretend that life was "normal" again. I was joking with him about it being the first time he rode down the elevator standing. Usually they roll him out of that building, to the car, in a wheelchair.
This evening Mike began running a little temperature, but it has come back down again to normal. He has also been feeling a little more fatigued today. We think it is probably the chemo treatments beginning to affect him. I pray his counts will be good on Tuesday and that we can keep him protected from any viruses or infections.
I praise God for keeping His hand on Mike, and your prayers and support have been such a blessing! Thank you.
"Holding the heart of another in the comforting hands of prayer is a priceless act of love."--Janet L. Weaver
5.07.2009
Mike continues to do well. He has had a tiny trouble with headaches and fatigue this week, which likely could be from either drug he's receiving for treatment. He automatically takes an anti-nausea medication prior to taking the oral chemotherapy to keep on top of those side-effects. So far, so good.
He has had a good appetite. I'm still struggling with getting him to drink more fluids. The doctor told us in Houston, labs showed Mike dehydrated, and strongly suggested he drink more. But Mike can be stubborn, and this is an area he resists me on.
There is a slight concern about his stitches that hold in the right biliary drain. They don't appear secured to me, and I even think the tube may have pulled out a pinch, but Mike doesn't want to have it looked at right now. The skin on that side stays moist and covered with dressing, because it is the one that leaks from time to time. I tried to leave it uncovered today, so that maybe the air would toughen up that skin around the tube opening. We bandaged the area below it to absorb any fluids. But one day didn't seem to help. That stitch seems to be in an area where it could easily be accidentally pulled out. If that happens; we head back to Little Rock to get it fixed...which could be a little hassle since Mike hasn't been fully approved for his medical insurance coverage. We're praying that will come in soon, so we could rest easier.
So these are a few areas where we would really appreciate your prayers for. Thank you so much for caring so deeply about us. You are such a blessing and comfort to us.
"I will bless the Lord at all times; His praise shall continually be in my mouth." Psalm 34:1
5.06.2009
Thank you very much for all of your love and support. It means so much to Mike and I. Our hearts are brimming full with gratefulness. We would appreciate your continued prayers as we try and live each day with these new challenges.
"We also glory in tribulations, knowing that tribulation produces perseverance; and perseverance, character; and character, hope. Now hope does not disappoint, because the love of God has been poured out in our hearts by the Holy Spirit who was given to us." Romans 5:3-5
5.05.2009
Mike is sleeping off his Benadryl and Steroid medication. So far, so good. We'll keep everyone updated.
5.04.2009
The steroids given before each treatment can be harder than the treatments themselves. For Mike, it winds him up tighter than a clock and it generally causes the next 24 hours to be rough... on us both! So, please pray that we weather that well. Also, Mike has "little issues" with his vital organs, so I would particularly appreciate your prayers for extra protection over these areas....his heart, his lungs, etc., as he begins these two new cycles of chemotherapy.
Mike is ready to fight and do battle!
"The Lord is my Rock and my Fortress and my Deliverer; my God, my Strength, in whom I trust." Psalm 18:2
5.03.2009
Mike continues to feel well. He is still doing physical therapy three mornings a week and he enjoys his shop at least a couple of hours during the day. The Lyrica drug he added a few weeks ago, definitely is improving the Neuropathy pain in his feet and hands. We were told by our oncologist that this drug has a way of accumulating benefits, so Mike may even feel better as time goes on.
Mike is anxious to begin his treatment on Tuesday. He's ready to kick the tumor around a little more and make it feel unwelcome.
Thank you for your thoughts and prayers.
5.02.2009
Mike is already in the process of being approved. We had completed his paperwork two weeks ago. We had to wait and completely exhaust our COBRA insurance before we could officially apply. We double-checked with CHIP on Friday, to be sure everything we're spending from last Friday forward, towards Mike's present health needs, will be retroactive and covered.
We'll have labs done first thing Tuesday morning, and hopefully everything will go as expected, and Mike will begin his new treatment.
We appreciate your continued thoughts and prayers.
"For I am the Lord, your God, who takes hold of your right hand and says to you, Do not fear; I will help you." Isaiah 41:13
5.01.2009
I posted about this problem yesterday. As we continue peeling away layers of this problem, we now have learned I can't even get my medications to be covered under new insurance for twelve months. Thankfully, Mike had stocked piled enough of my prescriptions to get me through the summer. But, as I was trying to figure out what I could maybe drop, against what we might be able to purchase at generic rates, I was overwhelmed to learn a 30 day supply of my prescriptions, would still be costly. So this nightmare isn't going away. It has us rethinking the "high risk" insurance program today, for me too, if I can qualify.
Some times when I'm having a pity party, I question God about why so many trials have come our direction....seemingly all at once. But, truth be known, God has taught us so many lessons throughout all of this. So much good has come even with the bad. Our faithful, loving, heavenly Father, has never left our side...even on the worst day. We have seen the tremendously big hearts of our family and friends. When we have hurt, they have hurt too. When we had something to celebrate, they were the first to leap to their feet. When the only language we've been able to speak at times, was shedding tears; they spoke back with a huge hug and reassuring smile. When they said "Friends Forever", they truly meant it.
I'm so grateful for all of you. For the roles each of you are playing in our life. If only you could see the beautiful story you are helping to write, you might get the glimpse of the blessing you have been to Mike and I. We love you all.