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In 2007, I began my original website, Sonshine's Haven. In 2007, it was turned into a blog and used to keep family updated on my first husband's fight with liver cancer. He passed away November of 2009. We were married for 34+ wonderful years and this journals some of that grief process I've gone through.
I have since remarried another widower, but Mike is missed dearly, and will always be a big part of my life.
At times, all of us will be called to act as witnesses to the suffering of another. We will be unable to affect the outcome physically. Words will fail us. Prayer will seem futile. And yet, the act of bearing witness to someone else's trials is a sacred sorrow that offers and astounding glimpse of eternal joy." by Ginger Garrett
"Being willing to stay with a loved one throughout their travail, can be difficult....YES! But offering yourselves as faithful companions on a dark and dreadful journey can be an unmeasured blessing." (paraphrased by me)
8.31.2009
Thank you for your continued prayers.
8.30.2009
Mike finished his Lovenox injection tonight. He will stay off of them until Tuesday, and then will continue them for a couple of more days after his procedure. He's anxious to get this paracentesis over with, and is expecting great things after it gets in. He's eaten very little today, hoping that tomorrow, he'll be rid of the mini-football he feels is in his abdomen due to the excess fluid. He still will need to clear the INR test before the procedure can take place. We hope to have that done early tomorrow morning. The procedure is scheduled for 1 p.m.
We appreciate your love, concern and prayers. You've helped us stand when life's storms have tried to blow us down. We could never thank you enough.
8.29.2009
Mike slept in late today, but since he has been up, I have seen a marked improvement. The swelling in his left arm/hand has gone down a little, as well as the swelling in his feet and ankles. I don't know if the Lovenox injections into his stomach are responsible, or if God and prayers are, but I am grateful.
He hasn't eaten very much today. He still feels very full, even after only drinking a half of an Ensure, a pinch of dinner and a pinch of apple pie.
We have been blessed today with visits and phone calls from family and friends. We couldn't be made to feel any more special than we do. AND....my son-in-law even repaired my evil weedeater, which constantly threw my cutting cord across the yard every time I started it up. I can't tell you how helpful that is going to be, especially at keeping my Christian witness. ;)
Anyway, it has been a day of blessings and gratefulness. Gratefulness for 34 years of a love of a lifetime. Gratefulness for 4 children and 2 grandsons. Gratefulness for dear family and friends. We are truly blessed!
8.28.2009
The fluid in Mike's body has built up so much, that the oncology nurse felt Mike needed intervention. The only problem is that Mike started back on his Coumadin (blood thinners) Tuesday. They drew a INR, to see if the procedure could be safely done today. This tests how thick Mike's blood is. If it was 1.4 or under they could proceed with the procedure. We then went to the Oncology office and waited with the RN, to see if the Paracentesis could be done. Mike's level came back as 1.91...which meant NOPE! So, the doctor has worked it out where they can do it possibly on Monday, if another INR returns that he is in a safe zone.
Mike was given a Vitamin K injection today, and that is suppose to speed up the process and allow him to have the procedure done Monday, instead of next Wednesday. Normally, it would require five full days of being off Coumadin to have the procedure. Mike has begun taking the Lovenox injections into his stomach to help this along as well.
On Monday, he will be having a Paracentesis (a tube inserted into his abdomen to drain fluid), and they plan to leave this tube in, since it will likely need continual draining. Of course, Mike isn't happy about getting another tube.
His left arm has swelled up double the size of his other arm. They believe the clot he had in June never dissolved, but must have been under control until he recently got off therapy. So these injections are to also help keep him safe with that, until he can resume the Coumadin. I believe they are planning to do an ultrasound of that arm on Monday, just to see if it is the same clot.
Anyway....Mike went to bed for the evening at 5:00 p.m. Relief lately for him, only comes by sleeping. He had an Ensure before going to bed. I think he is going to accept a feeding tube if it is ever offered again. I believe he's realizing the only chance he has to continue this fight, is to get some nourishment, even when his body is telling him it doesn't need it.
We would be grateful if you would pray for our strength to endure, to fight, and to live with this cancer.
8.27.2009
When I came home at lunch, Mike seemed out of it. I had a difficult time waking him up, and when I did, he just looked like he was staring right through me. It was hard to leave him at lunch to go back to work. The anxiety of not knowing what is going on with him, gets to me. So I asked Amber to drive over to check on him.
He did better this evening, but at 7, decided to head on to bed. Earlier today I had him call the oncology nurse and explain what he's experiencing. There was talk of tweaking his medications, and possibly draining his abdomen next week.
It's alarming me how fragile things seem to be right now for Mike. I appreciate your continued prayers. On Saturday, we will be celebrating our 34th wedding anniversary.
8.26.2009
Pain, fear, and sadness tries to swallow us, but it's a blessing and a victory, when love makes the loudest sound or shows the deepest gesture. Thank you for stepping into our turmoil, to throw us a lifesaver. You have gone far beyond what we could expect friendship, employer, or family could go. Unmerited love is the very picture of Christ Himself.
The past few days have felt like an extreme uphill climb. There have been moments when Mike and I haven't been sure we could go one step further; yet God quietly reminds us we can. We can because of Him. We can because of you. Thank you from the bottom of our hearts.
After a double thoracentesis on Monday, and a treatment yesterday, Mike is doing fairly well. He has experienced chest pain off and on today, but it is relieved by staying on the oxygen. His appetite is a little improved, although we're probably just holding his weight steady, instead of increasing it. He still is having trouble sleeping...and therefore, so am I.
But some more help is on the way. In addition to the graciousness of family and friends; Mike's sister and husband is on their way here. The moving van is coming tomorrow, and they will officially be arriving here September 4th. It will be such a relief to know Mom McSheehy (almost 92) will get the care and attention she should have. I have tried to juggle, to keep all the balls in the air, but I know I haven't been able to spend the time she needs, or deserves.
Our son has successfully passed his kidney stone after the stint was surgically put in. He is feeling so much better. Thank you very much for your prayers. Please pray that he will continue to heal and that he'll be able to have this stint removed quickly, without infection developing.
Please pray the tissue surrounding Mike's lungs would return to a normal condition and the fluid would stop developing in there, causing him trouble breathing. It hurts me the most when I see him struggling to breathe.
Mike is off of treatment until September 8th. We will continue to keep you updated. :)
8.25.2009
Update
Amber Lacy
8.23.2009
Last night, Mike woke me up around 3 a.m. in discomfort. I noticed when I had changed his dressing on his biliary site, there was nothing around it, which is unusual. Mike was feeling such pressure in his abdomen from the ascites; I asked if he wanted me to try and drain the biliary site. I told him I didn't think we should backflush it with saline. I didn't want to have the same problem occur as in June with the bleeding. So all I did was attach the drainage bag. Immediately, it began to drain. Then blood started pouring into the bag, just as before. I didn't know if I should stop it or not, but Mike and I decided to let it go, to see what might happen. Eventually, the bleeding stopped and it returned to the normal bile. It's troubling what is causing this. After it drained for a good while, I detached the bag and capped the drain.
Today, Mike looks like he's about 4 months pregnant. We have had to pull out his big clothes again, to take pressure off his mid-section. The fluid build up is making his legs and feet swell. He told me they feel like they are asleep when he tries to walk on them.
The blessing is that he's eating so much better. Praise God! I just wish we could gather up all our blessings in one swoop, and that his body would remember how to function again properly. We will be getting a treatment Tuesday, and most likely be speaking to the oncologist...about our problem over the weekend. I don't know what he might suggest.
I know God is with us in all that we're going through. As long as we're still fighting; even as exhausting as that has been at times, we've never lost the drive to keep trusting God for one more day, one more week, one more year. I'm straddling reality and hopefulness. I'm trying to brace myself if God chooses not to intercede and heal Mike. But I don't doubt for a second God's ability to completely, and supernaturally, heal him. He is all powerful! And He is Greater than science, or the medically impossible. I have more faith in Him healing Mike, than I have my ability to survive life without him. And I know what a fighter Mike is. He will not give up.
Thank you for being so willing to pray for us. The amount of comfort and peace we draw from you, is unmeasurable. Your loving kindness has lifted our hearts and spirits numerous times...as well as have moved us to tears. We have looked into your faces and have seen God's. He's lovingly caring for us even though we're in a lot of pain. We have so much to be grateful for.
8.22.2009
When we got to the ER, we explained the procedure he had done Friday and told them of the plans to have the other side done Monday. They did an XRAY, a blood gas and other blood work, which showed the lung hadn't collapsed, it only had a lot of fluid around them. The doctor felt there was not really anything they could do to help us. Mike was already on oxygen. He offered to admit us, if we felt we wanted to do that, but his suggestion was simply to speak with our oncologist. We were sent home around 7:30 a.m.
Since being home, we have tried to rest, but it's difficult for Mike to get comfortable. It hurts for him to breathe deeply, he has some bedsores that are really painful for him, and this other accumulated fluid isn't comfortable either. We're both pretty exhausted. We could really use everyone's prayers as we continue to fight our way through these obstacles.
8.21.2009
Mike's ankles and abdomen are still swollen, but he is feeling well enough at the moment to play his drums.
We are so blessed to have you praying for us. We would like to ask for you to also keep our son, Matt, in your prayers. He developed a kidney stone, and spent last evening in the emergency room. They have sent him home with pain, and anti-nausea medication, to pass it. We are so grateful for your love and support.
8.20.2009
Mike's procedure (Thoracentesis) will be done around 1 p.m. tomorrow. Please pray Mike will be comfortable, and there will be no complications.
Mike's legs and abdomen have begun to swell again. So today another prescription was increased to see if we can draw some of this excess fluid out. Prayfully, once the procedure is completed tomorrow, Mike will begin to breathe a lot easier, and the pressure in his abdomen might diminish.
We are so grateful you have come to this site to catch up on us and to see how you can pray. Thank you.
8.19.2009
Mike has really been putting forth effort eating the last couple of days. He cooked, and ate, a pound (minus two little guys) of shrimp scampi last night. He was so stuffed he couldn't sleep....
:(.....and neither could I...but I didn't eat the shrimp.
Tonight, he looks like he is six months pregnant. His stomach is so swollen, and his ankles are puffing up as well. I think the Ascites is on the return. We need to pray that away! It is so frustrating fighting this balance of fluids and the ammonia problem! Mike is weighing about 142 pounds, but I'm afraid it appears to be all fluids, and little actual weight.
He should be able to get some relief on Friday, when he has the Thoracentesis done. At least he might breathe a little easier. The cough he had been experiencing, has been remarkably better. I haven't seen him fussing with it at all today.
Thank you for praying for us. Nothing is more painful than watching someone you love struggling to breathe while coughing.
8.18.2009
Also alarming was Mike's ammonia level has increased to 63, which is high. Mike has caught himself doing odd things, so he had already suspected this had gone up. When he tried to use the remote control for the TV, as a telephone last night, Mike knew it had to be high. So they have increased an amount of one of his prescriptions to help get this number down.
Things just seem to be raging out of control since May...when Mike began taking the Xeloda. I just wish there were some way we could get him back to before that, so he could continue being strong in fighting this cancer.
Mike's other counts, including a bilirubin count of .06, were all good....except a sky rocketing alkaline phosphate total of over 2000, for which the doctor couldn't explain. His liver seems to be draining well, but not filtering correctly...and this is causing these other problems he's experiencing.
The oncologist also remarked how underweight Mike is...and told him he needs to get 2500 calories in him a day. Mike has improved his appetite the last couple of days, but trying to rise that number is going to be challenging for someone who already feels bloated and full. We may need to just buy enough Chocolate Ensure for Mike to have six shakes a day to get him anywhere close.
The additional problem Mike has been having is the development of bed sores. He has them on his tailbone, shoulders....anywhere where bone presses against skin. The oncologist said added protein in Mike's diet would help, alongside the antibiotic cream we're using.
Things became very difficult for me at one point, as I was waiting with Mike for his treatment to be over. Hearing Mike's raspy voice trying to talk, hearing his deeply congested cough, and seeing how frail he looked compared to all the others taking treatment, really upset me. I can read the concern in the doctor and nurses eyes, and I want to force Mike to follow their instructions, but I know realistically, I can't make him do anymore than he feels he can do. The desperateness I feel is overwhelming.
I was able to encourage Mike to eat lunch by suggesting a small cheese pizza at Brickoven after we left the treatment room. I've had more success getting him to eat that way, since he can choose what he feels like, at any given moment. We made sure he had an Ensure shake beforehand, just to get the nourishment he needs as well.
Please continue to pray Mike will increase his appetite, that we can get 2000-2500 calories in him a day, that his ammonia level would come down, that this thoracentesis would help Mike to breathe easier and possibly stay clear for longer than 2 weeks. That this cough wouldn't disturb Mike's sleep. That his liver would begin to function properly and filter out any bad guys.
We praise God for His enduring strength, the support of our family and friends, for God's provision with insurance and bills, for my compassionate and understanding employer, and for promising not to give us more than we can handle. It's really hard for me to say that last one without a grimace on my face.....yet, we would be nowhere without our Savior's grace and mercy. It feels like a dumpload of bad luck has buried us, but there still is enough voice to praise Him.
8.17.2009
Mike had a better day today, after a bad nights rest. He has developed a cough, that sounds like someone badly congested, yet he doesn't have a cold or virus, as far as we know. He went back on the oxygen Sunday after complaining of being short of breath. I'm concerned it has some thing to do with the pleural effusion problem. Mike is telling me he has a tightness in his chest and abdomen. He also says that his esophagus hurts when he coughs. We see the oncologist tomorrow and it wouldn't surprise me if he doesn't order a chest xray, or press us to have an endoscopy. Mike will also receive another treatment tomorrow, if all the labs are good.
On the praise side of things....Mike has eaten better the last two days and nights. They are still smaller portions than he usually eats, but I'm grateful he is receiving some good nourishment. We have been so blessed to have friends from church, prepare us meals a couple of days a week, for the entire month of August. A lot of love has gone into them, and we're so grateful!
His lovingkindness is new everyday!
8.16.2009
I picked up a couple of DVD's to watch in the evening. It was something different to do. Mike had some coffee ice cream, but not what I consider a portion. (No jokes! I know some of you probably would like to make comments about what a portion is to me!) He may have eaten one scoop, but that would be pushing it.
Then Mike had a rough night, and ended up sitting and watching TV in another room because he couldn't get comfortable. He got little sleep last night.
But today is starting off good and hopefully Mike will do better. Thank you so much for your thoughts and prayers.
8.14.2009
Our grandbaby is three today. He will be having a birthday party tomorrow that we are invited to. I pray Mike wakes up feeling well enough to attend. Everyday is a surprise....but I doubt anything could come between Mike and his grandson on his birthday.
Thank you for your constant support and prayers. I couldn't imagine going through this without your love and friendship.
"Hear my prayer, O Lord, and give ear unto my cry." Psalm 39:12
8.13.2009
I pray Mike regains some of his energy and strength soon. I can tell he's a little bored, especially on days when I'm gone at work. Please pray with me that his appetite would increase and he can get back to physical therapy.
8.12.2009
His strength hasn't returned yet, but I feel he may be getting closer to being able to do a little more. He has drummed a couple of times when he's had a little extra energy. We've discussed his returning possibly to physical therapy, although he may need to be driven the first couple of times. He hasn't driven himself, in a long while. He still gets pretty dizzy when he stands up fast, and he still has lapses of time when he's dazed, and doesn't remember things which have just occurred.
But so far, this course of treatment has been kinder to him. He is off this week, but will receive another dose next Tuesday. We will also meet with the oncologist to make sure all the other lab levels are good.
Our prayer requests are to fatten Mike up.....for him to continue to do well on this course of chemotherapy....that he will become stronger, and might be able to begin walking, or doing physical therapy....or get back into his workshop building again.
We are so grateful for every ones love and prayers. We have also been tremendously blessed by the meals some of you have provided for us, a couple of days these past few weeks. That has given me the flexibility to come home from work, eat quickly, and get some chores down before the sun goes down. Thank you so much for being a blessing to us.
8.11.2009
8.09.2009
The new medication seems to be helping, because the nausea hasn't been a problem and he seems to be able to eat more. I'm not so much worried about the size of his portions, as much as I'm concerned about his nourishment.
Last night our daughter-in-laws' birthday was being celebrated, so we were invited to Matt and Jill's home, to eat pizza and play the game "Are You Smarter Than a Fifth Grader" with all of the family. Mike did well. He ate a slice of pizza, played the game with all of us, and even sat outside to watch the grandsons play in the yard. During the game, he was acting like his usual happy and goofy self. For a moment, life felt right again, but even though that did my heart a world of good, it tears me apart coming back to reality.
This week is a wallop of good and sad memories for me. It celebrates, not only my own birthday, but my daughter-in-laws birthday, my first grandsons' 3rd birthday, Matt and Jill's 8th wedding anniversary, and the 2 year anniversary of my dad passing away. It's hard to celebrate, with so much pain and uncertainty. Especially when it involves important men in my life.
I'm in a strange place right now. Needing to be strong, when I've lived my whole life always having someone strong, watching over me. That probably sounds pitiful, but the truth is the truth. Mike has always cherished me, protected me, and took care of the difficult. Life is just a little scary and out of place for me right now. I'm not comfortable in the shoes I'm walking in today. So many new responsibilities I'm unfamiliar with, and so many hats I'm needing to wear.
I'm thankful for my faith and trust in my Heavenly Father. I know He is watching out for me even though I don't understand His will for my life right now. I just keep placing all my trust in Him to see me through this.
I love all of you and appreciate the role God has given you in my life. I'm so grateful for your love and support. I'm so thankful for all of your prayers. I only pray God will allow me to repay you one day with my love, prayers and support.
8.07.2009
Mike had the tissue surrounding his lungs drained last Friday and this past Tuesday. You would think with that much fluid collected, Mike would automatically feel so much better. But actually, he didn't. In fact, Tuesday night he vomited from eating 3 meals that day, and then Wednesday, he was in worse shape. He couldn't sleep because he had so much reflux, he was burping and hiccuping non-stop. All this with hardly eating. Thursday morning, I called Mike while I was at work to see how he was doing. He told me he had vomited again. Because his behavior had changed so drastically overnight, I asked him to call the oncologist.
So Mike called yesterday late morning, and they wanted us at the hospital by 2 p.m. to run labs, and to see the doctors. Mike could barely walk. He looked troubled about even getting to the car. So we ended up inching our way to the car. Thankfully, Tuesday I got our handicap parking pass, so when I got to the hospital, I was able to get a close parking spot and a wheelchair. After they did Mike's labs, he asked me not to move the car, just to push him all the way over to the front of the hospital to see his doctor. He didn't have the strength to get back into the car and drive around to the front.
As soon as we got to the chemo-lab, the nurses jumped into gear by giving Mike two large bags of fluids. They also spoke with the oncologist. I raised the concern that Mike never feels hungry. That every time he tries to eat, he feels full before he starts, and if he pushes through that, he eventually throws it all up. For the first time, I felt they understood what I had been trying to explain, since June 10th, when Mike first landed in the hospital. They wanted to scope Mike's esophagus to see if they could find any blockage, but the doctor that would do that, would be unavailable till the end of August. So the oncologist decided to try a new anti-nausea medication, given intravenously, and then to put Mike on another medication (Reglan) at home, to see if there were any improvements, before putting Mike through the stress of another procedure.
When Mike weighed himself yesterday, after he vomited last, his weight was down 10 more pounds to 122. It had us both pretty upset. We both realize he can't continue to live at this pace. If this new medication fails to help, the plan is to get Mike scoped either here in Russellville, or in LR. If a blockage, or mass is found, they are considering putting in a feeding tube, to nourish Mike. The recent CT's didn't show any tumors in that area, but I suppose there's always a chance, something could be hiding.
Before we even were released from the chemo-lab, Mike was feeling much better. It's just the craziest thing....balancing fluid in him...to fluid getting out of him. He's either dehydrated, or excess fluid has built up in his abdomen and lung area. So far, his tubes are holding up and the infection he had last week has passed. He has pulled out the middle tube by about 3 inches, so we're anticipating getting that repaired next Monday or Tuesday.
I'm sorry to leave so many of you worried. The stress of dealing with all of this has been very exhausting and time consuming. Needless to say, I've got my hands full.
8.05.2009
I left for work a little early this morning, so I wasn't able to rouse Mike awake before I had to leave. When I came home at noon, he was still sound asleep in bed. He didn't hear me come in. He hadn't eaten breakfast. He hadn't taken his morning medications. I tried to offer him some lunch, and could only get a half of a toasted ham and cheese sandwich down him, and a snack container of applesauce. He went back to sleep.
Amber dropped by with Ethan later this afternoon, while I was at work, and she commented that Mike was acting a little odd. She called me sharing that he wasn't really talking to her while she was here, so she decided to go ahead and go on home. I found the same behavior from him when I got home from work.
I've asked him if he is alright and he just says he doesn't feel good. When I try to ask for details, he doesn't really answer, except to say he's not feeling well. I couldn't get him to eat dinner. He asked for me to make him some spaghetti, which I did, but he didn't eat it. I finally begged him to drink an Ensure shake, which he did. He went back to sleep.
The company that brought out the oxygen, got orders from the oncologist today to drop by some testing device to test Mike's oxygen overnight. He's not suppose to have the oxygen on tonight...just this tester attached to his finger. Then we are suppose to hang the device outside on the front door, and they will pick it up. I guess we'll eventually find out what this is all about.
My spirits are really low this evening. I think most of it is just feeling tired and a little bit discouraged. The reality is, this is not getting any better...or any easier....and today I'm not as sure I have what it takes to run this race to the end. Tonight I'm more the child, than I am the warrior. I'm grateful to have your prayers.
8.04.2009
We didn't end up seeing the oncologist today. We misunderstood the schedule. Mike had his second treatment today and we just finished getting his other lung drained. Mike misunderstood the measurement yesterday of what was removed from the left side. It was 1000 cc's of fluid, not 1000 mililiters. Today they removed 1300 cc's off the right side. He struggled at one point during the procedure, which they said was a charley horse of sorts, in his right lung. It scared Mike briefly, but he was able to catch his breath moments later, and the spasm went away.
Mike has been very unsteady on his feet today. He was strongly urged to ride in a wheelchair at both the doctors office, and later at the hospital, when he had to quickly sit down because of dizziness and weakness. He felt pretty drugged following the treatment...I'm assuming, from the Benadryl. He is home and in bed now, so maybe he can get some rest and feel better.
Thank you for continuing to pray for us.
.
8.03.2009
We learned today, that it really isn't Mike's lung being drained, but the membrane surrounding it. Only one side was drained today. They prefer to do it this way, to avoid a lung collapse. So we will schedule the other side to be drained hopefully sometime this week. 1000 milliliters was taken off, which by Mike's description, sounded like quite a lot. There looks to be just as much on the opposite side, noted by the sonogram, that we still will need to get drained. The previous times he's had this done (when he was in the hospital), one side drained at 700 milliliters, and the other at 450. It is common for this fluid to return, so unfortunately we may be revisiting this procedure often.
Tomorrow we have lab work, an oncology appointment, and a treatment. So far, Mike is doing fine on these new treatments. The Levaquin is taking care of the recent infection Mike had around his drain. The oxygen is helping him to breathe better and Mike ate a good lunch today. I'm so grateful for God's protection over Mike, and for encouraging us with the little successes we can celebrate. God is Lord over the big and little things!
Thank you very much for all of your support, love and encouragement. We especially appreciate your help in providing us with meals these next few weeks. When Mike isn't hungry, or can't eat very much, I'm not inspired to cook for myself. Hopefully, his appetite will improve and I can get back to enjoy cooking again soon.
8.02.2009
8.01.2009
I've noticed Mike is pretty much taking his highest dosage of pain medication, as timely as possible now. His neuropathy pain is minimal, now that he is on the Lyrica, but the right drain is incredibly uncomfortable for him now. He's also developing sores from where his body is sitting, or lying down, now. It is pretty much skin to bone in those areas.
Mike and I are wondering what the plan will be for Monday for the thoracentesis....whether it will be one lung, or both. At one point today Mike thought the oxygen was helping to possibly dry out his lungs. He felt the crackling, when he was breathing, was less. It was hard for me to tell a difference. I think Mike wishes he didn't need to have this procedure done. It's somewhat uncomfortable for him, and I think the bad experience he had once before, is always in the back of his mind.
As always, we covet your prayers. We are so grateful to hear how so many of you care about what is happening with us. Thank you for not giving up on us...for continuing to trust God with us, for divine healing. Hope, love and prayers is what is keeping us going.