Pages

In 2007, I began my original website, Sonshine's Haven. In 2007, it was turned into a blog and used to keep family updated on my first husband's fight with liver cancer. He passed away November of 2009. We were married for 34+ wonderful years and this journals some of that grief process I've gone through.

I have since remarried another widower, but Mike is missed dearly, and will always be a big part of my life.

At times, all of us will be called to act as witnesses to the suffering of another. We will be unable to affect the outcome physically. Words will fail us. Prayer will seem futile. And yet, the act of bearing witness to someone else's trials is a sacred sorrow that offers and astounding glimpse of eternal joy." by Ginger Garrett

"Being willing to stay with a loved one throughout their travail, can be difficult....YES! But offering yourselves as faithful companions on a dark and dreadful journey can be an unmeasured blessing." (paraphrased by me)

6.27.2009

I've learned a new word today. Myoclonus. This is a brief, involuntary twitching of a muscle, or group of muscles, often called Myclonus jerks, or seizures. This describes the movements, I was seeing from Mike at the hospital, that I had described as tremors. Since we've been home, this condition hasn't been as often, or grand. I'll still see them though, while he's sleeping, or while he's trying to hold his hands behind his head, watching TV.

Mike has lost an incredible amount of weight. Since being released from the hospital Wednesday, Mike has gone from 150.5 pounds to 139.9 pounds. I know a lot of this was fluid built up from Ascites, but it's alarming me a little to see how thin he's becoming. His arms and legs really look thin and frail. He has even had trouble looking at himself in the mirror. He is still very wobbly when he's trying to move around. Is still very weak. His stomach is not as swollen or tight and he's not in any pain. He continues to eat fairly well for me.

His feet and hands are peeling...from the Hand and Foot Syndrome he experienced 3 weeks ago. The blisters on the pads of his feet, eventually popped, and now he's peeling off quite a bit of thick, dead skin from them. I'm convinced the Xeloda is responsible for this recent setback. If it was causing this amount of damage to Mike's outer skin, then I can only imagine what it was doing to his insides.



We are going to attempt to go to our son and daughter-n-law's house this evening for dinner. Outside of coming home Wednesday from the hospital, Mike has only attempted getting out of bed once, and he ended up back in bed shortly after. Maybe a little "Drew" time will help Mike feel stronger and better.

I have a praise to share......Mike didn't gag or spit up last night, so we both were able to get a good nights rest. Thank you for praying for us and helping us through this difficult time. I'm so grateful for each and every one of you.

"Greater love has no one than this, than to lay down one's life for his friends." John 15:13

No comments: