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In 2007, I began my original website, Sonshine's Haven. In 2007, it was turned into a blog and used to keep family updated on my first husband's fight with liver cancer. He passed away November of 2009. We were married for 34+ wonderful years and this journals some of that grief process I've gone through.
I have since remarried another widower, but Mike is missed dearly, and will always be a big part of my life.
At times, all of us will be called to act as witnesses to the suffering of another. We will be unable to affect the outcome physically. Words will fail us. Prayer will seem futile. And yet, the act of bearing witness to someone else's trials is a sacred sorrow that offers and astounding glimpse of eternal joy." by Ginger Garrett
"Being willing to stay with a loved one throughout their travail, can be difficult....YES! But offering yourselves as faithful companions on a dark and dreadful journey can be an unmeasured blessing." (paraphrased by me)
11.28.2008
We have gone over a week now with zero problems with either of Mike's biliary drains. Having the right drain function properly, has given both Mike and I a gift, few could probably understand, or even appreciate as fully as we do. We continue to pray both drains will continue functioning properly, until the regular exchange mid-January.
Mike's appetite continues to build and everything is staying down, which is a blessing. We try to sneak in a vanilla or chocolate shake now and then, to help build up calories. Mike is still hovering around 147 pounds (up from 138- but down from 175).
Mike was able to enjoy a little reloading yesterday in his shop. He said the neuropathy has messed with his fingertips a little, causing a little numbness, but not enough to prevent him from doing this hobby. It has been so important mentally and emotionally, for Mike to do things that feel "normal" for him. The changes that have happened over the past 1 1/2 year in his life, have been a lot of the uphill climb for Mike. I would appreciate your continued prayers in this particular area.
"How good it is to know that when we come to Him in our need, we are coming to The One who came and gave His life for us." -Roy Lessin
11.25.2008
We discussed the past four months with our doctor, explaining all that took place at MD Anderson. He stated Mike had been through a lot over this time, by the reports he was sent, and how he found it amazing, this tumor ever got to Mike's liver in the first place. He felt the aggressive position we took the first year was helpful in shrinking the tumor, and although ultimately he would have liked to have had the tumor resected from the liver completely, he was satisfied to take a watch and see approach now.
He was glad Mike tolerated radiation treatments well in Houston, in hopes to completely sterilize or kill the tumor. The position now is to see Mike in three weeks to follow his blood work. The bilirubin count today was .8, which is very good. Everything else seemed within acceptable margins, as well. We will go to MD Anderson the middle of January for the complete workup again, and to see where we are at that point. If everything is looking good, Mike will likely wean off seeing doctors at MD Anderson, and return to only being followed by the doctors back here. Mike and his oncologist discussed the need to have Baptist Hospital in LR, talk with someone in Houston, to find what they did to make the biliary exchange less painful for Mike...and without general anesthesia, which led to the fiasco last July. A couple of simple phone calls should be all it takes. Mike plans on trying to have a conversation with the radiologists in LR soon, but hopefully well beyond the next scheduled exchange in January.
The situation regarding the blockage in Mike's subclavian artery was discussed. The oncologist told Mike that this blockage isn't affecting or involving his heart, and because he isn't showing any signs of trouble with his left arm, numbness, pain, etc,...and because a pulse can be felt in that arm, blood supply must be coming from another route, and it is probably best just to leave things alone. This was his opinion at least. Mike is scheduled to see the cardiologist at MD Anderson in January concerning this too, so we'll see what is suggested then.
So, we feel extremely grateful to everyone who has been involved in our situation, and just praise God this Thanksgiving, for being our strength and ever-present help in all of this. We have so much to be thankful for and the mercy and grace He has shown us over this year is a constant reminder He is at our side. But I just especially wanted all of you to know how grateful I am for each and every one of you too, for staying at our sides as well, and helping us face this day by day. We have drawn such strength and comfort from you, because of your prayers and love. Sometimes the hardest battle, is feeling alone in situations like these, and every one of you have reminded us often that we're not. Thank you from the bottom of our heart, and have a Happy Thanksgiving.
11.24.2008
Today Mike resumed physical therapy, and after an hour, he was tuckered out. I worried slightly when he came home and he layed down, wondering if he might have over done things, but he seemed better when he woke up.
Thank you for checking in on both of us today. As we continue to adjust to our new life, please pray God's presence will fill any empty places we might be wrestling with, and He will leave us His grace and strength to take things in stride, and face each new day. We will be seeing Mike's oncologist here tomorrow morning at 7:30. These appointments are difficult, and a little scary for me, so I would appreciate your prayers.
"We never need to be without hope. For as we look into the future with the eyes of faith, we will see that God is already there." Roy Lessin
11.22.2008
"Cast thy burden upon the Lord, and He shall sustain thee." Psalm 55:2
Thank you so much for praying us through this bad spell.
"I pray that you will begin to understand how incredibly great His power is to help those who believe Him...." Ephesians 1:19 TLB
11.21.2008
Thank you for continuing to pray for us.
"The Lord is our strength and our song." Exodus 15:2
11.20.2008
The Intervention Radiology team increased the size of Mike's right tube, although to the naked eye, it's difficult to see any change. So far, everything is working well, and Mike has not been in very much pain from that procedure. We were in and out of MD Anderson within 2 1/2 hours. We didn't want to risk Mike traveling, just following the procedure, so we waited until this morning to head home. Everyone is hoping we won't have any trouble until we see them again in January.
I do have a special prayer request for Mike though, concerning his weight. Since Sunday he has dropped another 8-9 pounds. He has been having trouble with his stomach feeling full even though he's hardly eaten very much, and last evening, he couldn't keep his only meal of the day down. I'm concerned, so I would appreciate your continued prayers for him in this area.
I would also deeply appreciate your prayers for me, for an extra measure of God's strength and grace. The past few days particularly, have been a little hard, seeing Mike so sick.
"I pray that you will begin to understand how incredibly great His power is to help those who believe Him...." Ephesians 1:19 TLB
11.17.2008
"When we are going through tough times in our lives, Jesus doesn't stand on the outside of our difficulties. He is in the midst of each thing we walk through in life. He is there to speak peace to us, to calm the storm, to assure us of victory, and to walk with us into a new day." Roy Lessin
11.16.2008
We would appreciate your prayers for strength, and a lasting solution to this reoccurring problem.
"So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with My righteous right hand." Isaiah 41:10
11.14.2008
At one point today when we were outside Mike looked a little jaundice to me. After my bringing it up, Mike shared he was concerned he might be a little yellow himself, so we called the doctors office to see if they might want to do some bloodwork to make sure everything is okay. Mike doesn't have the other general symptoms he usually gets when his bilirubin count begins to rise, so we're both hoping we're over-stressing and things are fine. The low fevers continue to happen at night but seem to be gone by morning. He will have some bloodwork done Monday morning just to be sure everything is okay.
"Don't worry about anything, but in everything, through prayer and petition with thanksgiving, let your requests be made known to God." Phillipians 4:6
11.13.2008
Tomorrow will be another physical therapy workout for Mike. He's been moving around slowly today because of Wednesday's PT workout. They had added a couple of exercises for him to do and he was pretty tuckered out by the time we left. I think more than anything, just having this to go to and do, helps motivate Mike. He's never been one to just lay around the house.
His energy level is still running low though, and that is causing some frustration for Mike. Little maintenance projects have been pushed to the side the last 1 1/2 years Mike has been sick, and even though I try to do as much as I can, there are a lot of projects just way over my head. Mike has tried to do some of the easier tasks, but wears out very quickly. Today, he was trying to repair something and was having the worst luck. He ended up having a mini-meltdown and it hurt to see him so frustrated.
Mike has been running low grade fevers almost every evening. So far, they have never been over 100 degrees, but they are enough to make him hurt all over, and concern me. We know if we were to call Houston (who have been involved in the last 3 biliary exchanges) they would probably have us come in to check for infection or even redo the tubes. That's not easy to do living here in AR. But both Mike and I are worried about returning to LR where previous exchanges have been done, because the last one there in July, put him in the CCU for several days. So, we're kind of feeling caught between a rock and hard place. We would appreciate your praying with us, that these fevers would stop! And that we can get through until January with no major infections.
"O Lord, be our rock of refuge, to which we can always go; give the command to save us, for You are our rock and our fortress." Psalm 71:3 (Praying God's Word)
11.11.2008
Leaning.........
Mike began physical therapy Monday morning and will continue every Monday, Wednesday and Friday for at least three weeks. They are needing to take things slowly because Mike tires quickly. But he is getting a good hour workout, with scheduled rests in between.
Being home has been wonderful, but it is also becoming an adjustment for Mike. Not being able to do very much is frustrating him a little, and I can tell he is missing his job. Being in Texas was enough of a distraction that he never really dealt with the loss of his job until now. This week, he's just feeling a little out of place and discouraged. Please pray for God's peace and comfort, as he tries to make the adjustment to all of this.
We continue to lean on our faith to guide us through this journey and to work out every little detail that's before us. We would appreciate your continued prayers for protection, discernment, and wisdom.
"Lean on, trust in, and be confident in the Lord with all your heart and mind and do not rely on your own insight or understanding." Proverbs 3:5 (Amplified Bible)
11.09.2008
Angels In Our Midst
(Margaret)
(Mei, Mackey, and a student nurse on far left)
I am posting a little late, but we're home safely. We arrived in close to midnight Friday evening. We spent most of yesterday washing laundry, opening mail, and loving on kids and grandkids. It is so good just to be home.
11.06.2008
Thank You
Mike and I are very exhausted, but it will be so good just to be in our own home, and to be near our family and friends. We want all of you to know, your prayers and help, have carried us through these past six weeks. We never could have made it without you. Thank you from the bottom of our hearts.
Love,
Mike and Beverly
"Come to Me, all you who labor and are heavy laden, and I will give you rest. Take My yoke upon you and learn from Me, for I am gentle and lowly in heart, and you will find rest for your souls. For My yoke is easy and My burden is light." Matthew 11:28-30
11.05.2008
Repeat Procedure
"Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, Who comforts us in all our tribulation, that we may be able to comfort those who are in trouble, with the comfort with which we ourselves are comforted by God." 2 Corinthians 1:3-4
11.03.2008
Good Outcome
Mike had his procedure a little later than scheduled. (around 1 p.m.) They suspected either the tubing was too close under the surface of the skin, or the radiation treatments might have been causing inflammation. They decided to go ahead and completely redo his right biliary tube, but they were able to keep Mike comfortable during the procedure, and hopefully we'll get the results they are looking for. He had to remain in recovery longer than we wanted, but they called ahead to radiation on the main campus, notifying them we would be getting to treatment 2 hours late. Mike and I didn't breathe a sigh of relief until he came out of his treatment, realizing at that moment, we were going to be able to keep on our schedule to come home this weekend.
Again, thank you for praying us through today.
"Blessed are those who keep His testimonies, who seek Him with the whole heart!" Psalm 119:2
11.02.2008
Blessed!
11.01.2008
Answered Prayer!
"Thanks be to God who gives us the victory through our Lord Jesus Christ." 1 Corinthians 15:57